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Hello, I would really like support please. In July 2023 I had a tumour the size and width of a man's pinky finger removed from in my spinal cord ( neck). I have been on gabapentin for nearly 2 years and amitriptyline for 3 years. Within the last...
Has anyone had something similar, my partners had hormone injection and radiotherapy which they say will just be one session. He was doing really well then a week later his energy had vanished, spasms have increased and now taking morphine. He's unable...
Have just joined today and am looking to talk to anyone who like me has had a thoracic ependymoma - mine was at T7 - T10. My surgery was 25 years ago and I would like to hear from others who have had surgery some time ago. I have declined a lot in the...
Hi my name is Sandra I have in the past 10 days been told by gp over the phone that mri shows tumour on my spine, 6 herniated discs, and narrowing of my spinal chord. I have spondylosis C5-7 T1 and 2 L3-L5 and S1 and S2 which was diagnosed after TIA...
New here, 4 days after ependymoma intramedullary spinal cord tumor removed. No results yet from oncology but numbness from chest down. Can't go to bathroom on my own and have only sat up once woth extreme pain. Lost and down
Hi So I have had a bit of a journey. Initially in August 24 I suffered what I thought was a bad case of Acid Reflux where I thought I had damaged my rib. I was regularly getting stomach issues and it felt different. I checked into the local GP who latched...
Hi there My husband is due to go into surgery next week to biopsy and try to debulk a suspected ependymoma which runs from C4/5 to T1 in his spinal cord. Although the surgeon is optimistic we have been warned that he could come out the operation with...
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Diagnosed after months of hip pain with tumour in spinal cord ,cauda equina. Now waiting for more MRI under contrast for spine and brain . Just feel sick inside ,scared of the coming surgery and afterwards ?
Hi, Have posted before on another page. I have to wear a back brace for another 3 months. They shrunk my tumour with steroids, but told me last Friday it will probably come back. I het so depressed not knowing the type of cancer it is. Had 2 biopsies...
