High grade ESS

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Anyone with high grade ESS? I was just diagnosed yesterday, still in shock.. have no risk factors or any major symptoms except one day of spotting which warranted for d&c that revealed this diagnosis.  Still waiting on ct scans etc..I am 10yrs into menopause and am 59 with fit build thin side..devastated

  • Sorry, didn’t mean to worry you more than you already are. I have other health issues that have compounded the problem. 

    For me, taking it one day at a time and one hurdle at a time has made it more manageable. 

    Researching online can be good and bad. So be careful not to go down a rabbit hole. 

    I found some studies that made me feel more confident about my treatment plan so that was helpful. 

  • Yes, CT scan is clear for now

  • So it’s not ESS then ? Sorry if I’m confused. 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • The diagnosis i got from my D&C was High grade ESS.. the d&c was performed to remove a polyp..

  • Very often ESS is mistaken for a polyp or fibroid, that is what they thought mine was. Have they confirmed it’s ER PR positive? Are they going to do a hysterectomy? Start you on hormone treatment ? 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Since mine was diagnosed thru tissue testing from D&C, they say its accurate diagnosis.. still waiting to see gynec oncologist for treatment plan.. my report says ER negative and PR positive.. seems like strange combo, usually they both are positive or negative 

  • That’s why I was confused, as you had your CT results I assumed you had seen the oncologist. Do you have a date for that yet? It’s stressful waiting, so hopefully it’s not too long. 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • My obgyn ordered CT while waiting for my appt..since I already have the diagnosis, heard CT required before any treatment..

  • Yes a CT would be necessary, but it is unusual to get Ct results prior to the oncology appointment. 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Hi   just wondering how you are getting on? Any news of a treatment plan yet ? 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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