Leiomyo Sarcoma

After having what was thought to be a ganglion removed from my foot I was diagnosed with LMS in October.

MRI and CT scans show that it had not presented anywhere else however a further operation was carried out on my foot late November, this was to get clear margins....thankfully it was successful.

Going forward, I will undergo lung & pelvis tests at 3 monthly intervals. Fingers crossed these will continue to show that I am clear of LMS.

Good luck for hubby on the 14th x

thankyou i will update with good news hopefully xx

I was diagnosed with LMS in January 2021 and had surgery on my vulva. Last years CT scan showed it hadn't travelled and I'm due this years scan in February. 3 monthly MRI and annual bloods. Hope all goes well for your hubby on the 14th x

Thankyou, I hope all goes well for you as well xx

When my wife was first diagnosed with Leiomyosarcoma nobody even said the work cancer. Hers was believed to be of gynaecological origin but had spread before they found it and was therefore "incurable". She had two lots of chemotherapy and her cancer is not stable - and been that way for over 6 years. Her repeat scans are now down to annual.

Always amusing when she sees a locum doctor or the out-of-hours thought - the often end up looking up Leiomyosarcoma on wikipedia.

Before I came to the community I don't think I had even met someone who really knew what the term meant. It can feel really helpful to share.

<<hugs>>

Steve 

Thankyou for your encouragement, I am glad you’re wife is doing well, being very new to this, there are so many questions, but we remain positive, and your comments has helped Thankyou xx

I hope you get positive news today. Keep in touch xx

Thankyou so much, just hoping and praying, and then we know what we will be dealing with, feeling positive today xx

Today we had the good news, that there was no further cancer detected on the CT SCAN. We now can deal with the mass in his thigh, and we are feeling very positive for the outcome, thanks to the amazing team at the Royal Liverpool!

Great news, hopefully surgery to remove and then continuous testing to ensure all clear for years to come x