Spindle cell tumour

FormerMember
FormerMember
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Hi everyone 

I was diagnosed Thursday with Spindle Cell STS. Having operation to remove it on Wednesday. It's all happening so quickly now after waiting 4 months for a diagnosis. I'm under the London sarcoma teams in London and Middlesex although I live in East Sussex. 

Self isolating alone now before my op. Obviously feeling worried.

Anyone else in similar situation?

Bluebells 17

  • Hi  and welcome to the community.

    Cannot say I would make a match for you but still remember the wait for a diagnosis. Glad to hear they can operate and especially that you are under a specialist sarcoma team as that can make a huge difference to the outcome.

    It can be a bit of a challenge having a rarer form of cancer in that the statistics are fairly hopeless but fingers crossed for a good result on Wednesday - let us know how you get on and fingers crossed your stay here will be brief.

    <<hugs>>

    Steve

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  • Hi bluebells, I was diagnosed with spindle cell sarcoma last week too. Radiotherapy & then surgery is planned. It's a big shock. Have you had your operation now? I hope it went ok and you are now recovering well. Thinking of you. 

    Take care

    Xxxxx

  • Hi Bluebells 17

    I hope your operation went well and you are recovering well. 

    my partner was diagnosed with high grade spindle cell sarcoma in Sept 19, following radiotherapy the tumour was successfully removed with clear margins in Jan 2020.

    He has 3 monthly scans since and all is clear, thankfully.

    wishing you all the best 

    Good days give you happiness, bad days give you experience