Full body scan today. Terrified.

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Hello

This is a big step for me to register on here but I thought it worth a try because I feel so terrified and powerless right now. 

I had one of my thigh muscles completely removed Nov 2020 because of soft tissue sarcoma. All going well with the leg now,  but in an Xray 2 weeks ago there was a shadow on my lung which had appeared since my first xray in Feb. I have a CT scan this afternoon to check my chest, abdomen and groin and I have this awful feeling that this is the end. 

I beat bladder cancer in 2017. Went through a messy divorce and had reached a perfect life in a new home with a new partner and glorious kids.  Why can't I just be happy. 

Anyway.  Sorry for moaning. I guess we are all in this together. Fingers crossed for some much needed good news. 

T

  • Hi and welcome to our community.

    Hope the scan went ok. There is no need to apologise on here though - we all understand sometimes it can just feel like the world is out to get us especially when we finally feel things are coming together.

    I might hope one bit of good news for you is that you found our community. There is an old saying about a trouble shared that can sometimes feel very true and we have a great collection of resources dragged together from the experience of so many people.

    <<hugs>>

    Steve

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  • Thank you so much Steve. That means so much. 

    I'm afraid they found 4 tumours in my lungs of varying sizes and in both sides  I've an appointment next week to get a treatment plan. 

    I'm devastated and just trying to digest the news.  I guess I need to move to the lung Cancer group. Such a friendly helpful bunch of people on here either way. 

    One thing,  they think the tumours are aggressive which means they will respond well to chemo apparently.  And hey,  at least they didn't find them anywhere else.  Always a bright side. 

  • Hi - it does seem to be one element of balance in the equation that aggressive tumours are easier to target. Although my wife's tumours are in her lung they are still leiomyosarcoma and so the treatment options for her are still the ones appropriate to soft tissue sarcoma though. As you have had two types of cancer I guess a question might be what type of cancer is this now. Treatment options can be highly focused - often with less side effects - or more general.

    Waiting for the treatment plan - and the treatment to start  - and then waiting to see if that plan works - sometimes we have to be very patient - and sometimes that is really hard.

    <<hugs>>

    Steve

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