Leiomyosarcoma

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So after 4 years NED my team discharged me despite the plan to be reviewed for 7-10 years. After I got back in clinic im told my last test was 75% clear, but 25% inconclusive ... WTF! 

CT scan overdue, not sure what to expect and lost all confidence in Nottingham. Anyone got any advice? 

  • Hi  

    Sorry to read this, my first step in advice would be to talk to your GP to see if they can provide some information.

    While with me it is not cancer when a hospital gave me a run around and I spoke to my GP he said "they ignore me the same as they ignore you" - that was actually quite helpful to me since we have had dealings with the PALS department before and after I contacted them the consultant actually rang me two days later - result.

    <<hugs>>

    Steve

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