Hi. Just had my follow up call from QA radiologist, strange how different two calls can be, after speaking to sarcoma doctor last week at Southampton. Just been told that the tumour was growing rapidly and had even grown in the three weeks from scan to radiotherapy. Feel petrified again. She said good that I’m feeling ok , and hopefully a good sign, but when I asked about the fact I knew I’d had half the radiotherapy disease, as I’d asked Southampton doctor, she asked how I knew. Then when I asked size tumour was, at radiotherapy, she said it didn’t matter. I feel like they’re keeping things for me , but too scared to find out more. Sorry for rambling Jane xxx
Hi Jane...I can only say what I've been told...which is that during radio tumours can sometimes swell but there still may be cell death inside.. I was told that I cant have a scan until the end and was told that while the people giving radio will see the tumour via the machine for their purposes my consultant said she would only be contacted if they had any concerns...I know it's all such a worry as we cant see inside our bodies but I think feeling ok is a good sign....when do u get your next scan/ results? X
Jane I would listen to the oncologist and not the radiotherapist. In my experience things never go as smoothly when being treated by 2 different hospitals. Are you having CT at QA? Or Southampton x
I think that is better Jane, it can take a while to get scans from one hospital to another, and they don’t always use the same system so not as easy to read.
Hi I've only had my assessment and tatoos, not started yet...I'm in that three week waiting period...I always ask loads of questions at the start so I know what to expect and that's what they told me...I'm keen to know because I can feel my pelvic tumour and think I will feel if it shrinks...which is when they said it can have cell death initially...I wont have my scan till the end of the sessions and 25 to 30 planned x
How big is yours, is yours a recurrence too?! I can’t physically feel mine, so I can’t tell if it’s shrunk or not, but I don’t get the same ‘rattling’ feeling I had before, so hoping that’s a good sign
