Feeling hopeless !!!

You need to try be positive now darling I’m awaiting treatment and also scared but we can only take 1 day at a time and remember it’s gone for now and it’s our you 

Hi Jane, that is completely natural to want to go and hide. I felt the same at the beginning of my journey. Do you have an appointment yet to discuss the treatment plan, or are you playing the waiting game? X 

Hi

i have an appt tomorrow to discuss the operation etc, then my treatment plan will come from another hospital that specialises in Sarcoma’s. Just so scared of hearing more bad news xxx

Hopefully you will find out more tomorrow, good luck, let us know how you get on x 

I hope your ok sweetheart I’m just starting my journey it’s so hard eh xx

Hi Annie. 
im ok thank you, just very up and down as I’m so frightened. When have you got your Petscan? Sorry to hear your journey too, it’s very difficult isn’t it. 
I only met my perfect man 7 years ago too, weird, and I’m 49. 
tough times, none of us deserve this, I keep asking why too, but as you say, why not me!? 
xxx

I had my pet scan last week MDT meeting Monday so will know all Tuesday xxx

Hi Jane, I'm so sorry that your operation was so huge. I'm 4 weeks post op and still in a lot of pain. I've lost over a stone in 4 weeks as I'm struggling to eat. I can only manage a couple of bites then within an hour I'm doubled over in pain and have horrendous diarrhoea (tmi sorry). I'm eaten up with worry, I'm convincing myself that I have lung Mets. I've got my CT scan on Saturday morning then I'm seeing the sarcoma consultant at the Christie on the 7th September. Everyone keeps telling me to be kinder to myself, I expected to bounce back from this surgery as I have from previous ops but I'm a lot older now and have several other serious medical conditions. Be kind to yourself and take things easy. Deb x

Hi Annie, I hope you get good news after the MDT meeting. Debx

Thanks