Firstly I suppose that - having scrolled through the list of all those cancers to find this forum - I feel a bit of a fraud moaning about mine.
I’m 45, and I’ve developed this little growth on my nose from what for years I remember being a little pit, like a scar in which the pores would get blocked - I’m wondering now how long ago things started changing, though looking back at photos it’s been growing more noticeable for about a year.
I went to see my GP earlier this year. Well, I got in to see the nurse, and she was fairly sure it was nothing to worry about but sought a second opinion from one of the doctors. So I sat and waited a while but was pleased to have jumped the system and happy to hear that - in her opinion - it was some sort of cyst. Sadly, being simply a “cosmetic” issue, I was on my own if I wanted rid of it.
I went home and discussed it with my wife, and decided to drop in to the SK:N place I pass on the way to work every day, and got in to see one of their “medical directors” for a consultation (£150) about removing it. She took a look under what I think is a dermoscope (?) and asked me to take a seat ... I just knew what was coming. She wrote a referral back to my GP.
After my chasing it up, a letter finally arrived to inform me that “my GP had decided to refer me” to the BCC clinic in Leicester. I just had that appointment this week and was told:
- yes, it “looks like” a BCC (without any real examination);
- it’ll carry on growing if left;
- it’s not urgent, so an appointment might take months depending on other cases;
- if I want a biopsy to confirm it, that’ll add months;
- it’ll be excised and I’ll need a skin graft.
The last point floored me a bit; all the stuff I’d read suggested MOHS, especially given it’s near the tip of my nose. But apparently they don’t have the capacity. If I had ~£5,000, I could get it done at one of several private clinics in the area.
I’m hoping someone can tell me truthfully whether there will be a noticeable difference in the outcome, or whether I should raid the piggy bank, swallow hard and go private.
And any other advice!! Thank you :-)
Hi
I'm glad that you've found the responses helpful so far.
You asked how to get back in touch with your consultant. As you were left with a number of alternative ways you could proceed, were you given a contact number so that you could tell them what you wanted to do? If so, give that number a call and explain that you want to discuss further alternatives.
If you weren't given a contact number phone, the consultant's secretary and tell her that you need to speak to him.
Let us know how you get on and how you decide to proceed.
Hello Jenners54
I had to use Aldara for sixty days which turned into 4.5 months as I kept reacting severely to the cream. I needed breaks to let the skin settle only to go through it all again! It was a painful and upsetting journey but I am through it. My skin healed really quickly and I rarely cover up the area which was treated. If you can, try and hold onto the bigger picture if you can.
Please do let me know if I can help or support in any way. I remember too well what it was like.
Good luck, Rebecca xx
Hi Cuckoo
Having had my biopsy last week, today I went to the hospital and it is not a bcc or cancerous. It is a benign fibrous papule. Consultant was surprised but said these often look like a bcc. He has known people to have the surgery for bcc only to find out after it is benign.
Obviously you should listen to medical opinion but I would definite recommend the biopsy first. I had the stitches taken out today and there’s a pinkish red mark there that I’m sure won’t be noticeable in time.
When I had the biopsy done by the plastic surgeon he was reassuring about MOHS surgery and that after a short time it’s not that noticeable. If it’s not that big then hopefully the scarring would be minimal.
It’s frustrating about having to wait to see consultant but ask the GP. If it’s really bothering you and you can afford it, the consultation with the plastic surgeon who specialises in skin cancer was about £200 - might be worth getting their opinion so you can use that to go back to your GP?
good luck and let us know how you get on
Hi Cuckoo
Having had my biopsy last week, today I went to the hospital and it is not a bcc or cancerous. It is a benign fibrous papule. Consultant was surprised but said these often look like a bcc. He has known people to have the surgery for bcc only to find out after it is benign.
Obviously you should listen to medical opinion but I would definite recommend the biopsy first. I had the stitches taken out today and there’s a pinkish red mark there that I’m sure won’t be noticeable in time.
When I had the biopsy done by the plastic surgeon he was reassuring about MOHS surgery and that after a short time it’s not that noticeable. If it’s not that big then hopefully the scarring would be minimal.
It’s frustrating about having to wait to see consultant but ask the GP. If it’s really bothering you and you can afford it, the consultation with the plastic surgeon who specialises in skin cancer was about £200 - might be worth getting their opinion so you can use that to go back to your GP?
good luck and let us know how you get on
That's great to hear that your biopsy has shown it's not a BCC !
x
Thank you latchbrook. I was so shocked as GP, Dermatologist and plastic surgeon all thought it was. Just shows how important a biopsy is.
Hello. I can understand you worrying I myself was terrified. I had a bcc under my nose that went through my lip and needed a full thickness skin graft. I didn't ask any questions at the appointment but just kept thinking I can't do this and be wide awake. I saw a nurse later who explained everything to me including the fact that I could be sedated. I cannot tell you the relief. I spoke to my consultant who confirmed I could have light sedation. My surgery went ahead and I felt nothing and was talking and laughing and thinking why am I laughing when he's cutting through my lip. I had the skin graft done and a that was stitched then the padding was also stitched on top to keep pressure. Being where mine was I couldn't smile or eat very much as every movement of my mouth was agony. Ten days later it was removed and was told that it had taken. It looks pretty raw at first and I used to put a pad and tap over it. Once dried out i started to apply moisturiser. Just over a year now since having the surgery. Yes you can see I've had something done as part of my lip is missing but people hardly notice now. I am more than pleased with the result. I hope this can put your mind at rest.
Good luck
Sue
Hi Sue that’s really good to read that you are feeling good about it a year on. I had a sedative when I arrived at the hospital but went straight in for mohs and it hadn’t kicked in so I found it really distressing. Had the graft done the following day by a plastic surgeon and was happy to be asleep for that. It’s 5 weeks on now and it’s healing well and skin coloured with red around the edge, but able to be covered with make up. However the graft is still lumpy and bumpy, pimples on the edge, and is in the exact same place that you describe. How long did it take to flatten out? Did you do anything to help the scar heal? And how long did it take to not feel tight when you smile, chew etc. (my graft was taken from cheek near my ear.) Many thanks for your information.
Hello jennaustralia
I was told when the dressing came off to let it dry out. I did that and ended up with a very large scab right across the middle. When I phoned them about it, I was then told to start putting Vaseline it. It was about 8 weeks when I could smile properly and about 4 to 5 months that most of the bumps went. I can still feel a couple, one on my lip and one just above but if I look in a mirror I can't see them. I now just use my normal moisturiser. I don't use anything to cover it as to be honest it really isn't that noticeable, just a bit of an uneven lip. Obviously i use high factor sun cream. My graft was taken from my collar bone.
I'm sorry your sedative hadn't kicked in and don't know how you coped with that, I know I couldn't have. I loved the sedative, even though i was awake, it felt like I was in there for just a minute.
I hope this helps and feel free to ask anymore questions.
Sue
Thanks so much for the reassurance Sue. I have faith it’ll be fine in a year and hopefully starting to be less confronting in a few months. It’s one thing to hear from a doctor but much better to hear it from someone who has gone through it themselves.
I was told not to let it dry out as scabbing causes scarring but to lather it with Vaseline 4 x daily. Now that the rawness has healed, I’m trying silicone patches at night. I’m kind of getting used to it now, even though I feel like I have a sticky lump on my face. I look forward to the day I can go make up free again and not feel self conscious. As I’m 51, I have a lot of wrinkles above my lip, but the graft is smooth and shiny, slightly grey ish. The surgeon said laser might be worthwhile in the future to smooth out the whole areas above my top lip. It’s amazing that you haven’t needed any follow up treatment.
Really appreciate you sharing your story.
Jenn
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