Hi...post CRS and HIPEC 5 months with complications from adhesions

TKK 20 days ago

6 replies
11 subscribers
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Hi everyone, I’m Keat. I was diagnosed with high-grade mucinous appendiceal cancer and had CRS and HIPEC surgery, followed by chemotherapy. Recently, I’ve been managing some challenges with small bowel obstructions due to adhesions, which led to 4 hospital stay. The pain was unbearable and only IV morphine and strong painkillers administered via IV can take the pain away. I’m here to connect, learn from others, and share support as we navigate this journey together. Undergone 5 FOLFOX cycle but my 6th cycle has been delayed due to recent hospital stay.

TGIOM 19 days ago

You might want to join this private FB group.

TKK 19 days ago in reply to TGIOM

I am not on FB. But thank you for the suggestion.

Mallorca cyclist 15 days ago

Hi Keat, I haven’t had any problems with adhesions but seem to have got a swelling over the left side of my abdomen which I have been told is probably a seroma which is to late to aspirate. I am waiting to start chemotherapy treatment once I have been discussed at an MDT meeting. Can you give me some information on how the chemo treatment went. Many thanks.

TKK 15 days ago in reply to Mallorca cyclist

Hi there, Chemo treatment will depend on what type of Chemo. I had 5 rounds of FOLFOX and the side effects for me are... sensitivity to cold temperatures, tiredness and hiccups. Each round is a cycle of 2 weeks. But speaking to your oncologist nurse will help you manage expectations too.

Best wishes,

TKK

Mallorca cyclist 14 days ago in reply to TKK

Thank you for your reply, I know everyone’s experience will be different. At the moment I am waiting to find out what my treatment will be and for how long.

best wishes

TKK 12 days ago in reply to Mallorca cyclist

Hope you get an update soon.

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Hi...post CRS and HIPEC 5 months with complications from adhesions