Hello everyone, I'm relieved to have found this group! So my husband got diagnosed with PMP 2 years ago, stage 4. He had surgery and they removed some tumours and a lot of mucin but it's spread everywhere. He has a tumour on the portal vein of his liver which the surgeon wasn't willing to remove and that classed him as terminal 
Before that he spent a couple of years going to the GP with various symptoms which they ignored, in October 2029 he had a black lump on his belly button and they finally referred him for a scan, this turned out to be a hernia from the fluid pushing out out the mucin.
The scan showed he had cancer but they couldn't figure out which kind ( this was Blackpool Vic) and he got referred to the Christie's in manchester. It's been 2 years on Chemo... 6 months IV and 18 months cabtstitibine (sp?)
He's handled it all really well and his oncologist is surprised about how well the chemo is working ( he's 42 and fit) so there's really not been much change since he was diagnosed.
Sorry for the ramble but he was given a 3 to 5 year life span at first, the chemo has prolonged that expectancy but I really need to touch base with Macmillan and people that understand what we're going through.
I realise this is a survivors page but there is very little info on the internet and I would like to touch base with anyone who's been through it.
Kind regards, Elle
Hi Elle1981x
I'm sorry to read about your husband's diagnosis and I know what a difficult time having a cancer diagnosis can be for you both.
I'm not a member of this group but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list.
While you're waiting for replies, it would be great if you could pop something about your husband's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
