I had HIPEC surgery in May 2024. My last CT last March scan shows tha PMP has returned . Since I had a stomach Hernia repair surgery early this month, I don't feel I can handle having another major surgery this soon. The doctors want me to start on an off label drug, that seems to slow down the progression of PMP in some cases.
Does anyone know of any other integrated form of treatment or anything else that can help inhibiting PMP ?
Hi Galt and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
H there....I am a Christie patient. Surgery in July 2022 and recurrence in Oct 2023. I have previously had FOLFOX and currently FOLFIRI. Am interested what off label drug is being considered for you?
If you are in the UK, you might want to join the UK charity run Pseudomyxoma Survivor elo as there are a lot of members with experience who might be able to advise.
