These days in the UK one rarely sees the same GP twice. It might be another doctor at the practice, a doctor at a linked practice or a locum who is just there for a few days.
Either way it is unlikely that they will have gone through your medical history fully before your appointment, but they will ask any relevant questions during the appointment before prescribing any medication.
Recently I have had to contact my GPs a few times for relatively minor concerns, none of them related to pseudomyxoma.
When I informed them that I am without a spleen due to pseudomyxoma peritonei and cytoreductive surgery with HIPEC there was a kind of look of bewilderment as if they had not heard of this. I could have been wrong, but that was my impression.
When I was initially diagnosed my GP told me that I was the first patient at that practice with PMP, and another GP I saw there said to me "I will need to look that up". I have a couple of friends who are retired GPs and during their careers only had one case each of PMP.
I know that PMP is extremely uncommon and I have never heard it mentioned or spoken about in the press or on TV when rare cancer is the topic, but do others have similar experiences of "the blank look" when visiting their GPs.
I read on another forum that Macmillan sometimes send PMP info sheets to GP practices, is that done as a matter of course, or do they have to be requested?
Hi jcleeds
I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list.
I wouldn't think that Macmillan send out information sheets to GP practices unless requested as there must be thousands of practices within the UK. You could print information off from the website before you go next time to give to your GP if you wanted to.
I was diagnosed with melanoma 6 years ago and that type of skin cancer is also rarely seen by GPs, so I know how you feel. You almost feel like you're having to educate the doctor at your local surgery each time you go.
Best wishes
"Never regret a day in your life, good days give you happiness, bad days give you experience"
