Hello, new and op looming …

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Hello everyone. I’ve been lurking here since my husband (62) was sent for an MRI /biopsy a couple of weeks ago but this my first post.This seems like a really good place to seek advice and support so here goes. Please tell me if I’ve posted this in the wrong section :)

He’s now been diagnosed with prostate cancer, 16 out of 32 biopsies positive.

T2 M0 N0

PSA 8.6 

Gleason: 7 (3+4)

Fear: off the scale 

Only seen a urologist who strongly recommends surgery to remove prostate and we’ve been properly talked through all that entails. Having had cancer myself I was surprised that he wasn’t referred to an oncologist but of course I know nothing about prostate cancer.

It was mentioned in the results consultation that radiotherapy/hormone treatment was an alternative option but because of his ‘young age’ they are advising surgery as the best course.

From reading a lot of the posts here I know he’s extremely fortunate it’s not on the move beyond the prostate according to the scans.

He’s adamant he wants surgery… just wants the cancer ‘out’ but I’m concerned he’s not been given the full rundown on the alternative.

Any thoughts or advice gratefully received. Very keen to hear from people who had the op and what the recovery was like.

Thank you. 

  • I just wrote a really long reply and somehow it has disappeared and I can't get it back. I'll try again in the morning.

    • I am 62 years old and over the last couple of months I was diagnosed with Gleason 7 - 3+4. I had a partial bladder obstruction that pretty much ruled out getting radiation. They did a genomic test called Decipher which came back high, so active surveillance was out. I had my RALP and PLND on Aug 12. The first week after surgery was a little rough for me, but really felt better after getting my catheter out at day 7. I am happy that I will get the pathology report that details exactly what the cancer is, and if the cancer was all removed. I am hopeful, and believe we caught it early. I had a very experienced surgeon (over 8,000 of these procedures) who did nerve sparing on both sides. I already have erections. I do have some urinary incontinence, but that is mainly dribbling here and there. There are several different treatments, and if you are at a center of excellence you will get the best treatment recommended for your case, as each case is a bit different. Best wishes on whatever treatment your husband opt for!