Prostate Cancer

Welcome Gramps63!

This is the club you probably didn't want to join but there are some great folks on here who are very experienced and there will probably be someone who matches your situation.

You can see our individual profiles by clicking on our names in green or by clicking the round graphic next to it.  If you have a look at a few of these you can get an idea as to where we are along the process, and when you feel comfortable enough if you fill in your own profile with some details regarding your diagnosis we can assist with more specific information,

In the meantime the MacMillan website has some good support available - both over the phone and in print, as does the Prostate Cancer UK website. The PCUK "Toolkit" is an invaluable help with lots of different info if you are just starting out.

It is a stressful time between initial diagnosis, the tests and waiting for an MDT then the meeting to discuss the treatment pathway - we are here to support you and to just listen when you want to sound off - it is a really safe space.

Do let us have a little more info when you feel able?

In the meantime all the very best wishes

KrisPy

Hello Gramps63. None of us particularly want to be here but even so welcome. KrisPy has given some good advice. We're a mix of stages both in diagnosis and where are on we are on our treatment pathways. There's no pressure on anyone to divulge more than they want to but neither is there any reason to be shy in here. We all have THAT thing in common no matter how different we are in other parts of our life.

Cheers,

David.

Thanks for the advice, I was diagnosed in January, but think I have only just got my head around it. I am 63 and have 4/5 metastatic prostate cancer. I am on monthly hormone jabs and Daralutamide twice daily.

Thanks Gramps63

Are you on the Triplet Therapy pathway - ie will you be having chemo?

That is what I am on, but I have 12 weekly injections (of Zoladex) and twice daily Darolutamide, and I finished chemo at the end of May. Next step is to have a chat about Radiotherapy.

How are you getting on with the side effects of Hormone Therapy?  I. sat in on a great Zoom seminar run by Prostate Cancer UK last night about ADT  (HT) and we spoke as a group about how HT was affecting us - but we were all at different stages, some just diagnosed and other who had been on it for several years.  Might be worth having a look at their website to see when they might be running it again?

This thing does mess with your head, we all manage someway or another. and I have found that Yoga and meditation have helped me tremendously (something that a year ago I would not even have contemplated).

KrisPy

Hello again. I also was diagnosed in January with a Gleason score of 4 + 5 across each of 6 cores taken. Bone scan shows it has spread and I'm now on a duplet hormone treatment. Three monthly injection of Decapeptyl and take 4 tablets of Enzalutamide at the same time each day. It's got my PSA score down from 33.9 to 0.1. Side effects for me have been hot flushes, some mood swings and the rather frustrating restless leg syndrome. Fatigue is also an issue and I do have a habit of nodding off now and again.

Saw my Oncologist yesterday and the timeline foe effectiveness of the Enzalutamide rades from 18 months through an average of 2-3 years and sometimes even 5+ years. After that they say they well off me Chemo and/or some radiotherapy but I'll cross that bridge when I get there.

What has been very helpful is my local cancer charity (Force). They provide a safe space to chill out in where I can just go for a cuppa and they also offer a variety of services. Some complementary therapies are on offer as is counselling and exercise advice. Your hospital might be able to point you in the right direction.

Reach out is all you have to do and there might be more help out there than you can originally see at this early stage.

rades = ranges

Silly boy, I should always proof read.

Hello David (DavieDog) 

If you wish to edit a post - just click on the "More" button at the bottom, then edit and you can correct your mistakes - I use it all the time!.

Kind regards - Brian.

Hello Gramps63 

A warm welcome to the group from me too, although I am so sorry to find you joining us. 

You have had plenty of replies so all I will say this is a great group for help and advice (I would say that ) so feel free to ask any questions and join in with any conversations.

No question is too trivial.

Best wishes - Brian.