Newly diagnosed Prostrate Cancer

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Hello 

just looking for some advice.

My brother has just been diagnosed with prostrate cancer.  He is 55 years old. 

Gleason score 7, 3+4.  11 out of 25 cores positive, no spread.

urologist talked about Prostectomy or hormone treatment,  both look like they have pretty crappy side effects.

He has appointment on Thursday, wondered what questions he should be asking.

Has  been no mention of oncologist,
Any info or advice would be welcome, he overwhelmed

Thanks

  • Hi T123

    So sorry that you find yourself here, but it is really great that you are helping your brother out - that support is going to be really needed.

    I can only say that I found the info on the Prostate Cancer UK website really helpful.  Many of their information sheets are available for download rather than waiting for a hardcopy in the post.  I would however recommend the Toolkit, it is packed with info.   

    https://prostatecanceruk.org/prostate-information-and-support 

    Almost all of the info booklets will have a list of useful questions at the back.

    The Macmillan booklets are also useful but I only have those in hardcopy, and do not know off the top of my head if they are available to download.

    My own route into treatment was quite fast and I was passed to the Oncologist quite quickly and only saw the urology surgeon for the biopsy - and surgery not an option for me.  I am on what is known as Triplet Therapy - a double dose of hormone therapy plus Chemo.  Tough yes - but if you go into it as fit as possible and with a positive mindset it is manageable.

    If you click on the names in green or the avatar picture next to the name you can see our profiles - and you may get some info from them.

    There are some wise, experienced folk on this forum and I am sure they will be around to provide some support.

    The period between diagnosis and arriving at a treatment plan is always a difficult one - but once that plan is in place there is something to aim for, it's not easy but it gets easier...

    I have mentioned before the Headspace App which offers a Coping with Cancer course which I found invaluable in calming the churning mind that resulted from my own diagnosis.

    Best wishes to your brother and his support network!

    KrisPy

  • Oh - should have said - try and stay away from Google.  Go to PCUK and Macmillan for up to date info.

    https://www.macmillan.org.uk/cancer-information-and-support/prostate-cancer