Nice to meet you ......... T3 N1 M1B psa 720

hi pal im in a similar boat. if you read my profile it may give you a idea of whats to come. im currently on a beach in roda corfu . good luck with your treatment. 

Hello Rob (oldierob ) 

A warm welcome to the Online Community, although I am so sorry to find you joining us.

I have been here 4.5 years, I am a Stage 3 so although still on treatment still chasing the "curative pathway".

I can tell you that since I have been here "Triplet Therapy" has been introduced with great success. I have seen Community members join us - sail through Triplet Therapy - and leave us (still breathing!) with almost undetectable PSA. It's a great, hit it hard, hit it fast treatment.

Keep your will in the drawer, I hope no one needs it - stay positive and stick with us. I was diagnosed at 66 (70 now) Self Employed and drive a desk and computer, never lost a days work - but having said that - dodged chemotherapy so far.

As any questions you have - you will get answers nothing is too trivial.

Best wishes - Brian.

Hi OldieRob

Sounds like we are in a similar position - welcome!!

The folk on here are a great source of info and support so keep checking in.

The Triplet Therapy route is a hard one but I am sure it was the best one (for me).  I have just had my last chemo so am 10 days into my last cycle and am beginning to feel "normal" again...

The fatigue is the worst thing about it all - the rest of the side effects seem to be able to be countered by drugs in one form or another.  I am also looking forward to getting off the steroids at some point - I have a tapering off plan for the next two months or so.

I also thought about a visit to the solicitor - and as my current Will was decades old I did get it updated, signing off in a couple of weeks.  A good bit of house keeping BUT should not be a panic response!!!

The TT has good results and I am looking forward to having many more years yet!

My Oncologist wants to talk about Radiotherapy next - but it will not get to the lymph nodes in the abdomen as the structures are too crowded around them and high risk of collateral damage, so on the HT for life.....

The effects of HT will build up over the next weeks and months and you will see changes - my beard stopped growing for instance, and my pecs are becoming manboobs!!!! I am keeping up the exercise regime - walking, indoor bike, resistance bands and weights.  Still putting on weight though!!   I have recently upped my protein intake to see if it will help with muscle loss/exercise.  Emotions can be difficult at times - I can get very tearful very easily these days.

Chemo has its own challenges, but got through them with some careful risk management (think Covid days!). I didn't have much hair to start with and that got very patchy and lots fell out - I am now rocking a Yul Bryner!

You sound like a positive guy - and that is just what is needed now. Be positive, be strong and you will get through this.

My PSA at the start was 953, T3 N1 M1A and grade group 5 (4+5 = 9 Gleason) - my PSA is now<0.025 and has been for a couple of months - so it does work!!!

All the best

KrisPy

Hello oldierob,

A warm welcome from me also, although I'm sorry you had the need to join.

 I also had triplet therapy in 2024 following recurrence after initial treatment in 2016. I created a blog of my experience and a link to this is below if you would like to have a read when you've nothing better to do. I was also 68 when I had this and you'll see that all my 12 week check ups are OK so far. The next one is due in a couple of weeks.

As you'd expect it's not the best experience in life but it does produce excellent results so worth it as far as I'm concerned.

I wish you all the best, and any questions just ask and I'll do my best to answer.

Derek.