Hi, sorry in advance for long post. My husband has been living with metastatic cancer of a rare sarcoma type since early 2024 following emergency bowel surgery. It came out the blue just one month after his 60th birthday. So it’s been a hard few years, he has 3 monthly scans and his drug is keeping the spread stable at the moment but that could change any time.
But a few weeks ago he took himself for a PSA test. It quickly came back as slightly raised. He was sent for an MRI Tuesday. Then on Wednesday he got a text (a text!!) telling him to attend an appointment the next day with a prostate CNS. Well he knows CNS stands for Cancer Nurse Specialist, so he turned grey. At the appointment we were told it was very likely cancer, and had already started to escape the capsule, which I think is classed as locally advanced. Next step will be a biopsy to test for more detail and treatment next steps.
It’s incredibly difficult mentally, he’s very low, and it hurts hearing him talk about wishing he could be hit by a bus, or that he should have died when he had his emergency surgery. The thought of the constant medical interventions is really hard for him. But realistically he may have years of life still, so it’s hard to picture what life is going to look like, with TWO cancer diagnoses. We have two children in their early 20s, one is still at home and the other lives locally. They should be enjoying their freedom, not worrying about their dad’s health
I’m not really asking for answers I guess, just raging into the void that we’re having to deal with this. I know we’re not alone, and we’re thankful the children aren’t young, we know there are people in worse situations, and at the moment the latest diagnosis is still raw. Plus we are due scan results for his sarcoma tomorrow so it all feels never ending. Thank you for listening.
Hello Yellowsun
Welcome to our little part of the online Community (I know you have been around other groups for a couple of years) but I am sorry to find you joining us.
You have had a couple of great replies above, all that I can add is the prostate cancer is a very "treatable cancer" and once you have completed the diagnostic tests and have a treatment plan, life reverts to the "new normal".
The biopsy is next and here's a link to tell you what to expect:
it’s hard to picture what life is going to look like,
For me, life didn't change, I now do more than I did pre-cancer, I an on holiday this week and yesterday walked a challenging part of the Pembrokeshire Coastal Path with my wife and dog.
Remember the Support Line is there for you too on 0808 808 00 00 (8am to 8pm 7 days a week) and there's a wealth of knowledge on this group so please do come back with any questions, however trivial they may be.
Don't worry about the need to vent - we know how cancer can make you feel!!
Best wishes - Brian.
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