Hello everyone,
Just wondering what your timeframes were. Do mine seem to be normal or worryingly slow?
GP referral 5th February.
DRE 12th February
MRI - 2 weeks later.
Biopsy 5th March.
Diagnosis 28th March (All the above pretty quick).
Letter received yesterday advising me that the earliest appointment to see the Oncology Doctor is 21st May. (Now 28th May due to us being away).
I have not been prescribed hormones in the interim.
Assuming there is a delay between agreeing to radiotherapy treatment at the 28th May meeting and the actual treatment start date, by my assessment we will be way outside of the NHS guidelines from referral to starting treatment for cancer. Is this typical in your experience and does it take longer because it is viewed as a lower risk cancer (in my case Gleason 3+4 with 90% of samples a 3).
It would be useful to know.
Best wishes to you and thanks for your help on this journey.
Hello Murphy22
The issue here is the NHS has around 215 different Trusts. Take off the ambulance and mental health trusts that leaves you with about 185. They all act differently - some are pretty fast and keep within the guidelines, most are way behind and none differentiate between a Gleason 6 and Gleason 10 - all are on the same waiting list!
You are lucky!! () - you have the lower of the Gleason 7's (3+4) as opposed to (4+3) so it's slow growing, the delay should not affect the final outcome.
If you are worried and you can drop everything at a moments notice you could contact the hospital and tell them you are available to accept a short notice cancellation if one come up.
I hope the above helps, if you require any further details or information regarding the above please don't hesitate to get back to me.
Best wishes - Brian

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The pathway is different in every case. You will be fitted in as son as practically possible but the guidelines are not set in concrete.
This prostate cancer is a slow growing cancer so don’t worry. The choice is yours and the timings will be what they are.
Don't panic.
Good luck
Hi Murphy22 the initial tests have been carried out quite quickly. My take on the current delay is that you are relatively low risk and other Gleason 7, 8 and 9’s are getting priority. I presume your PSA was fairly low as well. The key is starting HT and I assume you will be on that soon after 28 May. Usually a gap to allow the HT to work and then have RT a few months later. Try and forget PCa for a while and enjoy your holiday (hope you are going somewhere nice).
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
here in scotland I was around 150 days from urgent referal to first ADT Treatment. The target in Scottish NHS is the same as the rest of the UK which is 62 days. Diagnosed end July last year and this coming friday is my first radiotherapy treatment of 20 fractions.. Dave
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