New diagnosis

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Hi all

I started hormone treatment for locally advanced prostrate cancer at the begining of February this year (Gleason 4+4, CPG 5, T2, N0)

Fatigue and thigh muscule weakness are the main side  effects along with some minor ones. Then during the dog walk this morning, on avrry step,  I felt pain in my right hip. Should I be worried.

First Oncology appointment is in two weeks.

Cheers

Ian D. J.

  • Joint pain comes with the cancer and possibly any extra drug you take.

    Osteoporosis is a common condition that’s associated with the cancer so the addition of Adcal, and Alendronic acid is a likely future treatment.

    All these things to think about.

    What I would say is that you could be jumpy due to this new normal you’re going through right now, so keep an eye on your body but an escalation is a few weeks of something aching or paining. This prostate cancer is slow growing.

    Chill and. Celebrate the day.

    Good luck

    Take care

  • Hello Ian ( 

    A warm welcome to the group although I am so sorry to find you joining us.

    It looks like you are organised and already have your diagnosis and a treatment plan - as you are aware Hormone Therapy comes with the benefit of plenty of side effects Joy!!

    A pain in your hip - if it's a new one is more than likely something brought on by old age or exercise and NOT the cancer, although I am not medically trained. If the pain continues you need to have a word with your oncology team - indeed you need to let them know of any new aches and pains.

    I hope the above helps - please do feel free to ask any questions - nothing is too trivial.

    Best wishes - Brian.

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  • Thank you to both of you for you support.

    I am trying to be positive due to being aware of a number of guys who have fully recovered, one being a close relation. But just worried that the initial diagnosis was N1 as the cancer is outside my prostate apparently closd to lymph nodes and there was a 4 week delay before i started hormone treatment.

    Oncology will put me right.

    Thank you again.

  • Hello  

    T2 is usually treated with "curative intent" and the Hormone Therapy should in effect put the cancer to sleep by starving it of it's food (testosterone) and Radiotherapy later in your treatment should kill it off for good.

    It would help us to help you if you put your diagnosis in your profile. To do this on your home page, click on the chair - top right, then "profile" then "edit". once you have written something don't forget to save it. You can read a Community members journey profile by clicking on their name or avatar.

    Best wishes - Brian.

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  • First visit to Oncolgy to discuss trestment was on 30th April. They took bloods and i received results yesterday. I was extremely surprised to read my PSA has dropped from 20.8 to 0.93... excellent... cancer would seem to be well and truly asleep. 

  • Hello Ian ( 

    Thank you for the update. Brilliant results. Long may the low PSA tests continue.

    Time for a little celebration me thinks BeersChampagne.

    Best wishes - Brian.

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