Hi,
Following a couple of months of quite severe back and joint pain, I was diagnosed last July (2025) with advanced stage prostate cancer. The back and joint pain is caused by the cancer having metastasized to my bones and lymph nodes.
PSA levels were up close to 4000 at the time, so I was immediately started on hormone therapy (degarelix) injections once a month. Subsequently daily enzalutamide tablets have been added to the mix and currently my PSA levels seem to have stabilised in the thirties, so still quite elevated.
The odd thing is that I had the standard digital exam but 2 different doctors stated my prostate felt normal. I had an MRI of the prostate and no problematic areas were found and then I had a biopsy of the prostate which came back all clear.
The bone cancer is real, confirmed by various scans, so the only thing that really explains my condition is prostate cancer, it’s just doing a very good job at hiding itself.
I’d be curious to know if anyone else is in this situation or knows of someone else who has similar symptoms?
Martin
