Hello

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Hi, this is all new to me. I’m more than confused. I was diagnosed with prostate cancer about three weeks ago. Ever since, my mind is a mess. I’m confused as to what is happening. I have lovely support from my family, but I still can’t seem to grasp what is happening. Is anyone in the same position? 
thank you. 

  • Hi Gedexe and sorry to hear.

    • If you can give some more info that will help give you advice 
    • So, last few PSA, Gleeson and MRI results or TNM staging.
    • Best wishes Steve 
  • Hi Steve. This was my first. My last PSI was121. MRI didn’t shown any spread. Having biopsy at the end of this month. I have to have a DEXA scan and also a PET scan. Heads still in a spin. Thanks for taking the trouble to reply.

    Gerald. 

  • Ok so PSA a bit high, good MRI shows no spread, hopefully other scans will confirm that, if the case then fairly easy to treat and potentially curable.

    Also hopefully biopsy shows a non aggressive type.

    When they have done the other tests hopefully they can start you on hormone therapy to stop it in.its tracks before starting radiotherapy.

    I know it's a shock initially but it does get better when a plan.in place

    Best wishes 

    Steve 

  • Hi  I found this period the worse time as you don't have all the information and answers. Rest assured this will pass once you have information from the Biopsy and other scans.  Depending on results will lead you to options. As I mentioned it's the most difficult time as your mind races. Does your name lead me to believe we are in the same neck of the woods?

    Mike

  • Thanks for the kind and positive words. It’s done me some good, knowing I’m not the only one in this situation alone.( it just feels like it)

  • Mike I’m in Whipton Exeter. Although, up to now I felt alone. 
    Gerald

  • I'm in Heavitree  and also under Ottery and the RD&E. I chose surgery, and had my op last week on the 12th. Recovering well and my experience with Urology team here has been excellent. Have a read of my profile it lets you know my journey. Treatment is a personal choice for all of us, but you'll find the answers to many of your questions here in the forums and articles as well as an ear or a shoulder should you need one.

    Mike

  • Hello GedExe, can I reassure you about several things, please?

    First and foremost - now you have posted here you are no longer alone! Everyone posting here has been touched by prostate cancer - having the diagnosis themselves or, like me, having a partner or husband diagnosed with it. The shock and the fear when you first hear the word ‘cancer’ are feelings that we all have experienced at the beginning but then we learn several things!

    The first thing we learn is that cancer, caught early enough can be cured. We also learn that, if it has spread, treatments now can control the cancer for a good while and that the medics have lots of different tools in their box to keep control of the cancer.

    We also hear that research is ongoing and newer treatments are likely coming down the track.

    The diagnostic tests are needed to gauge the aggressiveness and the position of the cancer. From this, your medical team can work out the best options for you for treatment. This is the hardest time emotionally as there feels like a total loss of control. But, once a treatment plan is sorted and started, things do settle down and we settle into a new way of being.

    My advice now would be to do a lot of your own research about prostate cancer. Knowledge is power and will help you feel in control. A good place to start is to read the Prostate Cancer UK leaflets that are on line. They are easy to read and explain all the different stages, treatments etc. This information will help you make your choices, know what to expect and what questions you might want to ask your medical team.

    i hope your hospital does not keep you waiting too long and that you will soon be sailing into calmer waters.

    pPlease know that we are all here for you and ask any questions etc. everyone here is very supportive and will try to help you along this journey.  

  • Hello to Mike from Heavitree. Same here RD&E for one scan that checked my blood by injecting me with a radioactive substance and Nighingale for an MRI. You  take care of yourself and good to talk. 

    Gerald. 

  • Thank you for the encouragement. The information you have given me is excellent. I will start investigating things. Hope all goes well for you.