Hello

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Hi, I've had prostate cancer since 2012. I had my prostate removed followed  2 years later by salvage radio therapy as my psa was rising. All well until 2019 when psa rose again and I was put on hormone treatment - prostap 3 injections for life. Prostap 3 has reduced my psa readings to OK levels which is very good.  I guess I'm looking for others experiences and support in dealing with side effects. I've found walking outdoors (an old passion) to be the best way to alleviate tiredness and improve my mood/ anxiety..but my good intentions require motivation! I've joined an art class (hence my community name of one of my favourite artists) and also a local choir as I love music and playing guitar. I find these hobbies - and my family (I'm a grandad) - help me to stay positive. However, I don't usually share my prostate issues with my hobby clubs. There, that's me in a nutshell. 

  • Hi  , that’s really impressive to be keeping a low PSA after 7 years.  Long may it last!  Exercise seems to be really good at combating fatigue, but I find it a balance that if I overdo it, I pay later.  On this forum you can ask anything and usually get some reply.

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • I wish I had you’re energy 

    You need to bottle it and sell it, either that or write a blog and let us in on your life of many hobbies.

    I sincerely hope you can keep the wolves from your mind which will let you be you.

    I’m mostly positive and have a very positive family and wife who rally round a push me to the higher ground when I fall back.

    My hobbies are nearly all related to chocolate so I really need to walk a bit more.

    Keep us posted on your fabulous world within the PC world. Thanks for posting and cheering me up.

    Good Luck

  • Nice to meet you, David - my first reply! Thanks, encouraging! I try to keep healthy so as not to contract a cold/ virus as this stops me from exercising and my mood suffers. When I begin again I have to do so with caution -  I know what you mean about 'overdoing it'. Luckily I have a local park where I can at least do a short 10 minutes walk if I'm feeling lacking in energy - ideally in the morning to wake my body up and put me in a better frame of mind. I've even got a favourite tree to glance at (remember I like art!) so its a bit of mind help too. Hearing from people like you I'm hoping will help my motivation to just get out there and do it  - so it becomes more of a habit. 

    Kind regards, Turner

  • Dear Mr U, many thanks for your text! It's good to hear that you are a positive person. I think that's the most important aspect of living with cancer. It's something which varies in me. Like you, I have a great wife and family for support. However, I'm told that it's a good idea to surround yourself with positive people - such as yourself. Hearing you say that I cheered you up, cheered ME up!!! 

    Kind regards

    Turner

  • Hi Turner, I also like to walk each day, but find it much harder in the Winter and this year just seems to have been so wet.  We managed to get a week away in Madeira and my motivation increased and fatigue reduced after each day.  Hopefully Spring is on the way.

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • Hello  

    A belated welcome to the group from me  -  I am on holiday in Turkey so I haven't been as active on the group as normal Sunglasses.

    Walking is my cure for fatigue too - out here I have been doing 4/5 miles a day, at home I tend to do a couple of miles a day - the answer to that one is a dog! We have had a dog for 46 years of our married life and when the last one passed we decided not to get another one - however I wasn't walking too far so the answer was a retired racing greyhound. 

    You are right in your mindset - keep active - keep your life busy and you will wonder just where the time has gone.

    If you click on most Community members names or avatar you will see they have recorded their personal journey and quite often you will find we all have a different way of dealing with the various HT side effects.

    Best wishes - Brian.

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  • 8km a day in sunny Turkey. As well as the physical exercise, the mental stress busting benefit is invaluable.  Keep it up  !  AW

  • Yes, last in Madeira in 2020. Stayed in Funchal. It's beautiful. The temperature and weather are perfect, not too hot or cold. My wife and I did one of the 'easy' levada walks. I used to rockclimb but even I was scared on one section with an acute drop (no handrail) to one side. Hopefully handrails will become more common!  Agree that winter has been long. I've just started to do a short river walk amongst trees near where I live - about half an hour, mostly flat trail. It does my heart good in more ways than one to get out there!

  • Hi Brian, pleased to meet you! Thanks for the tips - I'll follow through. You're doing really good, doing 4 - 5 miles a day. It's encouraging to hear that you also find walking seems to be a good way to tackle fatigue. I'm more like 1.5 miles at the moment, hoping to work up again after the winter to 3 miles with a slight hill included (100 metres). I've a dodgy / weak ankle  but found a very good brace (laces plus stretchy straps) which is allowing me back out there again. Is Turkey heat reasonable at the moment - I prefer 10 to 20 degrees myself. Cheers, Turner

  • High Turner58.  I think I'll change my name to Monet who is my favourite Impressionist.  Anyway I started painting at the age of 70 when Covid came along. I had an online business selling and repairing Film Cameras which I loved doing. 75 now and no intention to fully retire. My diagnosis came along July last year out of the blue. I had a sudden rush of blood to my head and rightly or wrongly asked for a PSA test to be added to my usual bloods MOT.

    So i've had all the usual test (MRI etc) and now on Regulux which is a daily tablet (changed from Prostat after the first 3 month injection.) Planned 20 Sessions Radiotherapy during April. I'm told 2 years on ADT but what ever happens I have decided to come off at 12 months or maybe 18 m at a push. Quality of life is important to me.

    So dealing with the side effects. Hot flashes I do my best to ignore. I call them my Madeira moments. We lived there recently for 2  years and Hot days were not uncommon which resulted in some sweaty nights.. 

    Fatigue is not really a problem for me as I exercise daily with walks and weights indoors. I actually feel healthier than I did 10 years ago. No real symptoms from this crappy disease. Bit of brain fog in the evenings but again not really a problem. I make sure i'm taking the recommended dose of calcium to keep my old bones as healthy as possible.

    In my opinion keep up your hobbies which is far more important than worrying about what might happen in the future. Life is for Living. 

    All the best Dave