Advanced Prostate Cancer

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Hello. I'm new to the Macmillan Online site but not to cancer. In January 2024 I was diagnosed with advanced prostate cancer, metastases in bones, lymph nodes and lungs. A bit of a surprise. Hormone treatment [Enzalutamide] has kept my PSA [which was 700 on diagnosis] undetectable so far. Side effects can be a bind but are preferable to the alternative. My main resource for support is my local Maggie's Centre, a short bus journey away from where I live. Looking forward to hearing how others are dealing with living with this cancer.

  • Hi  welcome to the club.  I think we all deal with diagnosis in our different ways.  Keeping a positive mindset really helps I think.  I am pleased you are tolerating Enzalutamide well, I found it very hard in the 3 months I was on it.  As you say, the alternative to treatment isn’t very appealing!  Having lived with this for a long time, we just try and do normal things.  I am reluctant to book anything too far in front but also we don’t put things off.

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • Thanks, David. I'm finding mindfulness sessions at Maggie's a great help with keeping positive. It is also a good place for someone living alone to socialise at the 'kitchen table.' At 77 I have many friends  my age and younger receiving cancer treatment and I realise that the enzalutamide is nowhere near so draining or gruelling a treatment as some of the chemo they are prescribed. I am very grateful indeed for all the support, professional and otherwise, I am given.

  • Great attitude. 

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.