Hello group members I'm Del 64 in Scotland and diagnosed in July 2025. Tumours containing cribriform early diagnosis given option of radiotherapy or surgery. Opted for RALP which, despite cancellation delays, went ahead 4th Nov but was required to be abandoned due to previous abdominal scaring. Offered perineal prostatectomy which, requires a tertiary referral to UCLH. As of this date, I'm still not clear whether the referral has been submitted as an update from Lothian Health Service does not appear to have any emphasis on communication requirement to the patient.
I have an understanding of the pressures on NHS however, the most frustrating thing during my, "cancer journey" has to be this lack of emphasis on communication!!! Having worked most of my working days in the public sector, I understand that communication is a vital ingredient and a health service ought to know that a cancer patient left in the dark is a recipe for poor mental health.
A wee update on where things are would go such a long way in my mind and I was wondering if anyone else shares my sentiment or experience?
