Prostate cancer now mets to bones

Wow this describes my dad to a t he’s 68 and been diagnosed with prostate which has spread to his bones ( hip and spine ) he’s actually not on anything but had tests done what’s your partners psa levels if you don’t mind me asking , my dads is 135 , he’s bed bound at the moment and very very angry with the world , nasty to me sometimes and I am the one looking after him 

he’s in bed all the time and has lost a lot of weight can’t even get him to his appointments at the moment! I’m ringing the doctors on Monday I want answers asap I can’t let this happen no longer 

Very low mood and so so tired aswell , also can’t eat much he’s had a crumpet all day 

looks unwell !! 

My hubby,s PSA is good low.. around 1.5 now..as gets PSA tests every 2weeks because of the meds he's on..as they can effect his liver..I'm just so concerned over his well being and loss of appetite and pain..I feel helpless..I'm so sorry to hear about your father..I hope he gets help and support he needs and u as well.. take care

Yes my dads got no appetite at all , I’m hoping as soon as I can get him in for this mri they can start him on something , he’s half the man he was and it’s sad because he’s the best dad but he can’t do anything at the moment he’s moody and sad all the time and shouting at us but if it wasn’t for me I don’t no what he would do , he’s got a morning carer but he’s not keen but I’ve told him I can’t do everything as well as work run my own home and look after my dog x 

I’ve had bone mets from the start three years ago, but there is no progression to any soft tissue yet.

Yes both yo and Disneyland are facing patients that do feel like it’s the end of the world. Bone Mets on top of everything else is a mountain to climb for everyone. It seems like a progression too far and can seem like the end but it’s far from it. The treatments are brilliant and well tested.

So the mind is where most of the problems are, it’s hard to see a future sometimes but there is an always hope of a long and happy future. So keep telling yourself and your lovely but struggling patient that it’s just another thing to get your head around.

Good luck

Hello Lola and welcome to the family.

My husband was also diagnosed with prostate cancer in 2020 with an aggressive form which initially presented in the pelvic and upper abdominal areas. He was put onto HT and had initial whole pelvic radiotherapy which was successful. Due to the aggressive form he experienced recurrences in the viscera every 18 months which meant changing HT, then chemotherapy plus SBRT to the mets. A PSMA PET scan then showed up bone mets and he had increased pain levels - these were zapped. Nausea can be a side effect of the HT and the experts had a solution for this depending on the level and timings so you need to go back to them and ask for help. My husband initially found dihydrocodeine sufficient but was then moved onto oral Tramadol and eventually onto a low dose patch which suited him better and gave him the relief he needed. The dihydrocodeine can cause constipation as can not getting enough fibre in the diet if he is not feeling like eating and this can increase the sensation of nausea so I added probiotics into my husband's diet such as Greek yogurt. I also found that by feeding him little and often helped. Fatigue was a problem for him from the start and increased over time -we worked round it finding that an afternoon siesta was his solution which allowed him to be active in the morning and evenings so that we could still enjoy our social life. For fatigue the general solution is to try and stay as active as possible. My husband also had low mood at times and again it is a know side effect which can be treated either with medication or by getting support. There are places like 'Maggies' if you have one near you or you could ring the Macmillan helpline but I am sure that Brian Millibob will be along to provide more information. I would do my bit by getting him out of the house for a coffee, meal or a trip out to change the routine and this seemed to help him.

From this I hope you have realised that there are different solutions to the symptoms your husband is experiencing but he does need to work with the team to sort out what is the best solution for him personally. Our oncologists favourite saying is that there are plenty of tools in the toolbox even for prostate cancer which has metastasized. On a final note - prostate cancer is very much a couples disease so please look after yourself.

Thank you Mr U for your positivity..It's all about getting our mindset in gear and finding ways #thinking to our future..