Hi , my name is Martin and I’m 56 years old .
This is my first post but just wanted to hear from people in a similar position to me.
I had a radical prostatectomy back in June this year following my diagnosis of Gleason 9 cancer that had broken out of the prostate and had started to spread to the seminal vessels .
The operation went well and I was recovering and found I regained control of my waterworks quite quickly , the consultant was happy with the margins on everything that was removed so all was looking positive the only negative was they upgraded my Gleason score to a 10 !
I did my 12 week PSA test and this had a reading of 0.605 which shows there were still some cells around , following a PSMA pet scan it showed a cell had been found on my T6 vertebrae on my spine and was told my cancer can’t be cured . This was obviously devastating news for me and my family to hear , I have now started hormone tablets and monthly injections and will see someone from oncology in January.
I am really struggling at the moment with coming to terms with this and the uncertain timescales they give you as I know everyone is different but would love to hear any positive stories from people who are going through the same journey as me .
Hi Martin, and welcome to somewhere you hoped you'd never be, I'm also Gleason 10 with bone mets, diagnosed nearly 4 years ago at the same age you were my friend, I'm just home from my 8th holiday of the year, 100% independent, and with mo8to come. Can you do yourself a big favour and steer clear of Dr Google, he'll only take you down the darkest roads, stick to trusted sites like PCUK, Macmillan, NHS; and the good people on here, I'm also not curable; but not curable doesn't mean not treatable, and for a long time.
Eddie
An excellent post by my friend eddiel - and he is so right. Yes, I’m T3a, but I understand his advice completely. Indeed, having this cancer (and some aggressive treatment in an attempt to cure) I have definitely changed my outlook on life in general and I , too, intend to squeeze every bit of enjoyment out of it whilst I can. AW
Hi Martin, my husband was diagnosed with Gleason9 incurable PC 10 yrs ago. He's still here thanks to HT injections, which he tolerated well and has been able to lead a normal life all that time. Good luck with your own journey.
Agree with how you view things in life ,
keep fighting
Thank you for your story , it all helps to give everyone hope as I feel we are very much left in the dark at times
Hi Martin (Mrfe7aa87 ), sorry I am late to the party but you have already had lots of good replies. As another ‘incurable’ I know what a shock it is to receive the diagnosis, but plenty of us have fairly active lives with this diagnosis. Now you are on HT hopefully there is no panic, but a question I would want to ask my team next time you meet, is ‘can you zap the T6’. It may not be possible but personally I would want to know. My oncologist was doubtful when I had a met in my sternum, but she brought in a clinical oncologist who specialised in RT who managed to zap the little bu..ers.
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
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