Advanced prostate cancer

Hi , my name is Martin and I’m 56 years old .

This is my first post but just wanted to hear from people in a similar position to me.

I had a radical prostatectomy back in June this year following my diagnosis of Gleason 9 cancer that had broken out of the prostate and had started to spread to the seminal vessels .

The operation went well and I was recovering and found I regained control of my waterworks quite quickly , the consultant was happy with the  margins on everything that was removed so all was looking positive the only negative was they upgraded my Gleason score to a 10 !

 I did my 12 week PSA test and this had a reading of 0.605 which shows there were still some cells around , following a PSMA pet scan it showed a cell had been found on my T6 vertebrae on my spine and was told my cancer can’t be cured . This was obviously devastating news for me and my family to hear , I have now started hormone tablets and monthly injections and will see someone from oncology in January.

 I am really struggling at the moment with coming to terms with this and the uncertain timescales they give you as I know everyone is different but would love to hear any positive stories from people who are going through the same journey as me .