About two years ago my husband was diagnosed with prostate cancer. He has been doing well on hormone therapy treatment. At the time, we were also told there was “extensive skeletal spread”, about which nothing could be done. This has not been mentioned again. I am wondering what to expect as as time goes by.
Hi HeyHoe,
Was he offered chemo or radiotherapy? My husband was diagnosed four years ago now, and his had spread to the bones too. He could only have hormone therapy as has other health problems. However, we were told that once the HT treatment started, it would also shrink the lesions which had spread to the bones. Does he have regular psa tests, so you can see if the treatment is working?
Gina
Thank you, Sidsmum
No he wasn’t offered radio or chemo therapy owing to various things, including another health issue called Myasthenia Gravis. And yes, he does have regular PSA tests and these are now down to 0.2, which I assume means the treatment is working! I don’t remember being told that the lesions in the bones would also shrink with the hormone treatment, but that is good news. I’m fairly sure they said this treatment would give him another three to five years, so that was good! He does get incredibly tired but he is getting better at pacing himself, taking short breaks often during the day. He keeps active doing all sorts of jobs, fixing things, building things, designing stuff and so on, so that’s also good. I also get tired quite early on in the day and don’t get half as much done as I used to. I find that quite annoying and am awaiting the results of some blood tests in case I’m deficient in iron or B12 or something…we shall see!
Hi HeyHoe4d787 the HT restricts the production of testosterone and PCa is fed by testosterone, so reducing the supply stops PCa in its tracks. Although PCa can spread to other areas it is still PCa wherever it is, and therefore is hit by the testosterone reduction.
A PSA of 0.2 at this stage is really good and as PCa is slow growing, if and when the cancer becomes hormone resistant it usually takes months or years to start growing again. Even then, the medics have more options available. Interesting about fatigue, we all judge ourselves before cancer and sometimes need to remember that we are getting older as well! None of us know what is around the corner and my philosophy is to enjoy life and make memories while we can.
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
Thank you David. That is really helpful. We are doing just that, enjoying life!
When diagnosed I was given 3 options which were Chemo and 2 types of HT
At first I considered chemo but then opted for Apalutamide after discussion with specialist.I have now been on HT since Jan 2024
The general discussion was that when the HT became ineffective I would have other options.
I have had a couple of episodes of depression in my lifetime and at the moment seem to be on a bit of a downer despite having much to be thankful for.
I fully agree that we are all on a roller coaster of appointments and treatments but perhaps life has always been like that.
At the moment my main target is to get my mojo back but as David says some of us are at an age where we just cannot do what we used to do in terms of hobbies,sports ,jobs etc.
Peace of mind is to be treasured but seems elusive at the moment.I will get there and hope for the same for everyone whatever affliction they have.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007