metastatic prostrate cancer , alzimers .and stage 3kidney disease . now in a nursing home being assessed

Hello Gena7 

I am so sorry to read your post - and I can't help with the financial advice but we have someone who can answer your question over funding and here's the link;

Ask an Information and Support Adviser 

I hope they can help with your funding question. Just tell them what you have told us and they should be able to help.

Kind Regards - Brian.

Hi Gena7 

if your husband required 24hour  “medical” care  they should be discussing continuous NHS care.   If he doesn’t meet the criteria they will do a means tested financial assessment but will certainly qualify for the personal care element and this is deducted from the NH bill . 

have a look at this 

https://www.dementiauk.org/information-and-support/financial-and-legal-support/guide-to-continuing-healthcare-chc-funding/#:~:text=(opens%20in%20a%20new%20window,breathing

best wishes 

Liz & OH xx

Not the same but, 

My dad has late stage vascular dementia.

Due to failings we never received any support over 10 years, we had police and Ambulance out multiple times. Advised the only option to force help was to take him to A&E and tell them we couldn't and wouldn't care for him.

I cannot describe the pain involved in this, 3 hours sat in A&E whilst he physically tried to fight his was past me as he no longer recognized me.

No one would help. In the end we were seen and by that time he was screaming that I was leaving him there to have an affair with his wife .

Mental health team were amazed we had been left alone to reach this stage of his illness.

I was literally a quivering tearful mess .

He was sectioned for his and our safety, found a temp bed in a secure hospital unit whilst they assessed his condition and meds.

Told them his mobility was bad in places he didn't know. They let him fall out of bed first night and break his hip. Surgery and now a short leg.

Long story short, as he had been sectioned, there is a responsibility for the council and government to cover ongoing health costs. Can't remember the exact phrase possibly s17

Subjective, but up to now we are OK. He's now in a care home for ex service men with dementia. It's fabulous and his aggression is managed well. 

Costs are circa 2K per WEEK .

im sorry first of all for my late responce ,,, and sorry for what you had to deal with .the assessment has been done and at the moment hes been given 2A . 4B and the rest are C . what ever that means . we now have a lot of reading of the report to do and so far we think he qualifies for at least 2 more A . we have got the opportunity to have our say once they have decided if or what they will contribute to his care . 

im glad hes now being looked after in his ex  service mens care home . sending gentle hugs to you . 

Hi Liz&OH . thankyou and apologies for for my rudeness in my late reply to you .that was very helpful .

regards Gena 

Hey Gina Gena7  absolutely no need to apologise. You have lots going on . I’m glad that helped . Hope they listened to you at the meeting . If they didn’t or overruled your input you can ask for an advocate to speak on your and your husbands behalf. Hope you are both doing ok and things work out .

huge hugs 

Liz & OH xx