Oncology tomorrow for the first time.

Had my first hormone injection 1st May and struggling at times with the effects - frustrating that the PC isn't making me feel poorly, but the treatment is! I have been told 2 years of HT.

As an aside, I have pushed and pushed the message to get the PSA test amongst my social group.

Hi, just wondering what particular effects are you struggling with? Maybe there will be guys here who can give you some tips and advice as to how to cope. 

Hi KJ911 Depending on your treatment, that figure for HT of 2 years could be reduced.   AW

I started with nausea first thing on a morning, which I resolved with a digestive biscuit (advice from a mid wife!) The hot flashes (face only) are quite regular and I tend to get fatigued quite easily.

I was asymptomatic prior to the treatment, I now visit the bathroom a number of times during the night and my sex drive has plummeted. 

I don't intend to moan... or do I.

Thanks for the reply Sidsmum 

Cheers Alpine Wanderer , thank you for your reply. I am scheduled injections every 6 months, the next being mid October.

My Gleeson was 7 and my initial PSA was 32, the second PSA being 44, post first biopsy.

Fingers crossed for today, I tend to feel so much better as I progress toward a plan, even after disappointing news.

Hi KJ911 , Gleason 7 isn’t too bad, do you know what TNM score you were given and have you had an MRI or bone scan?  This will help us relate to where you are.  Sadly fatigue is a byproduct of most PCa treatments, but exercise seems to help (but don’t overdo things). David

Thank you David2017 for the reply. Yes I have had an MRI and a bone scan. Thankfully the bone scan came back clear, the MRI showed only a tumour in the prostate. I shall have to grab the reports. Just leaving now to travel to the Freeman, did a dry run yesterday as I have previously been going to the Queen Elizabeth Hospital in Gateshead.

The nerves have now kicked in big style, I shall update upon my return

Thanks again. Kevan

Hello kj911,

I've been on Hormone Therapy (tablets every day) and six-monthly injections ( was three-monthly) for about eighteen months. I still get regular hot flushes which I can cope with, I just sit still for a bit and it passes. Tiredness was worse when i was working. Tended to nod off early evening and occassionally at the desk at work. Most annoying thing is the effect on my wristwatch, the moisture and salty sweat coats the back of it where it opens. Ruined one, had to replace it.

I think as far as the hot flashes are concerned, some chaps here use, I think, sage tablets.

I do sympathise as I still get them at night and am 74!!!

Gina

 KJ911 - Good luck for today - let us know what the oncology plan is.  PS - do you drive a Porsche?   AW