Hello I’m another newbie

  • 4 replies
  • 172 subscribers
  • 191 views

Hello all 

I have been on the road to discovering I had Prostate cancer since 2023 which started out as an enquirey into some bowel problems which I had an MRI scan for to discover if my spine was causing trouble it was not. However it was pointed out that my bladder was full to bursting which led to a trip to Urology at Salisbury District Hospital. They carried out lots of tests as I was concerned that it was a recurring problem that I had 30 years ago with a urethral stricture.

My stricture was still a problem and I was asked to carry out ISC three times a day to get any retention down as I was retaining approx 700/800ml after three months of nearly continual UTIs I went back to urology for help which resulted in a TURP procedure being done unfortunately it did not help and I am still doing ISC to this day.

However it was discovered that the chippings from my prostate we’re Gleason 7 3 + 4 and I would require a further biopsy which was done in February 2025 returning a result of Gleason 7  4 + 3 .

After consultations with radiotherapy team they were concerned about my ongoing bowel problems and suggested that surgery would be my best option as the RT could exacerbate my bowel troubles.

I them met my consultant surgeon who explained everything to me showing my scans and the proposed surgery which is Robotic iassisted and was then put on the waiting list and prescribed Bicalutamide and Tamoxifen in April 2025 my operation is due on 12th June so not a long wait, the tablets are making me very lethargic but I am still walking approx 5km per day to keep my fitness up and weight down.

i do not particularly have any worries about it however I don’t have a problem with getting up in the night to pee as my retention is still high I have been doing pelvic floor but I do not have any trouble with incontinence as I already struggle to void anything so hopefully won’t have a problem after my op.

sorry about the rambling post but I needed to explain the journey and had I not had a TURP would not have discovered the cancer so consider myself very fortunate to discover it before it has spread.

  • Hello  

    Welcome to the club - although I am so sorry to find you here. You have had a bad time bladder wise, let's hope the surgery gets rid of the cancer and sorts your waterworks out.

    I wish you well with the operation, feel free to ask any questions and let us know how it goes.

    Best wishes - Brian

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thanks Millibob I’m sure I will get a lot of reassurance and help 

  • Hello  and welcome. To get you started you can order a free pack from PCUK.

    https://shop.prostatecanceruk.org/surgery-support-pack

    My husband has not had surgery but he does occasionally have a little leakage so I would recommend getting a waterproof mattress cover until you know how things are going. There was also a useful thread by Huffies on pads which might help.

     Pads and what you need to know 

    I wish you all the best with your surgery and I am sure others who have been down that route will be along to share their experience but don't be afraid to ask any questions.

  • Thanks very much for your good wishes and info I will take a look at links you provided.Slight smile