Prostate cancer advanced metastatic life expectancy

Hi Aw,

Thank you for your reply. We are at Addenbrookes hospital as well. We have been given loads of booklets to look through removal of prostate, radiotherapy, hormone therapy (tablet and injections). I have a list of questions to ask the nurse tomorrow afternoon.

Len’s nodule was on the right side of his prostate. CT scan and full body bone scan showed no evidence of spread.

We seemed to wait ages for the results, now everything is happening at 90 mile an hour. Not complaining at all, just loads to read and trying to understand everything. 

Len’ brother was diagnosed exactly the same last year. His brother is 18 months older. Only difference Len’ psa was much higher. So hence why I worried so much. 

I will be putting Len’s journey on here, so any advice or help anyone may have I would really appreciate it.

I’m so grateful for this forum it has helped enormously.

wishing you well

Jan

Jan Jan12 , you can add Len’s journey on your profile. Just click on a name to see their profile or your own to add your story.  David

Hi Jan, what a lovely surprise to see you here, fab news your oncologist has said there is no spread, and he wouldn't say so if he wasn't sure, though it is nice to see it in writing, and best wishes for Len's MRI on Monday, I hope you've been enjoying the lovely weather, and keeping busy, maybe with a little exercise, It really helps with the worry and anxiety of waiting, and did you pop into Maggie's, they offer amazing support to patient, partner and family. Jan you said Len's PSA is now 35, has he started treatment?. 

Eddie xx

Hi Eddie,

Ditto. Hope you are keeping well and enjoyed your holiday. Thank you for the best wishes.

Len PSA was taken early February it was 39.52, then he had bloods done at hospital a few weeks ago and apparently it has changed to 35. No treatment has started yet.

The weather is great, we are planning to get out in the garden over the weekend and tidy up the garden ready for bbq’s. We walk our two dogs every day so we get plenty of exercise, two mental spaniels.

Maggie’s were brilliant didn’t realise they offered support. 

Take care Eddie,

best wishes

Jan

Hi, my husband was diagnosed with advanced metastatic prostate cancer in April 2018 aged 62.The cancer had spread to ribs hips and spine .He had   6 sessions of chemo Docetaxol, he coped remarkably well. He has  zoladex hormone injections every 12 weeks and has been on Abiraterone and steroid tablets since December 2021. The Oncologist  initially suggested a one year life expectancy but explained new drugs and treatments and trials were available .We joined a local prostate cancer support group which has been invaluable. Staying positive, being active, talking to friends and family is how we get through this. I was diagnosed with laryngeal cancer 5 years ago so for us we have shared our cancer journey. Be strong, we all have our ups and downs and when faced with this we have no choice but to get on with our lives, each day is a gift.     

facsy   

hi facsy.ive just read your post ,it's given me a massive lift as I'm diagnosed very similar to your husband with ribs, spine shoulder hip and lymph nodes psa 505 .  I'm one week in my chemo also taking 4 cancer tablets and 12 week hormone injection. Was 60 in February and i thought my life was over  ,but reading this has given  me and the wife hope thanks dale

Thanks Jan, but the holiday isn't over just yet, just enough time for a couple of days with the twins, and a long weekend in Scotland, before home, and back to medical matters, though some caught up with me today.

Isn't the weather fab, and gardening, bbq's and taking the dogs out sounds great and more importantly normal.

And I'm glad you went to Maggies, their a big favourite with many on the forum, and just being able to drop in is fab.

I only have 1 dog, a wonderful little hooligan called Poppyhave a lovely weekend and best wishes.

Eddie and Sheila 

These are my two monsters Paddy and Finley. Love them to bits. 
I do hope you are ok Eddie. And what a cute little fur baby you have.

Take care and enjoy the rest of your holiday and having special cuddles with the twins.

best wishes

Jan

Awww they are gorgeous Jan, thanks for sharing, Poppy stayed at the Scilly's, so just my aunties and I visiting my youngest, then taking them back to Scotland tomorrow 400 miles of fun, I'm not being Ironic, they really are the best travelling companions, and they drive, a couple of bumps in the road today, I had a blood test Tuesday, my neurologist requested it, my DILs GP, was happy to see me, she's private, i'm now anemic, I mentioned to her I had stomach pains after eating and she showed me damage to my pylorus and duodenum on a recent endoscopy scan, which I was previously told was clear, why urology/GP didn't pick up on these I don't know, anyway being treated now, and looking forward to Scotland, until J&J take off on their honeymoon to Kalamata. 

Eddie xx

Hi Dale, you will have days when you are completely overwhelmed, it is all about living well with cancer and having a supportive network around you. We see the oncology team every 8 weeks or so ,always waiting on blood results and if all is okay  we try and do something nice together, meals out and day trips to celebrate .Live life to the full as best as you can.