Father with Prostate Cancer- Has been feeling down.

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My dad (65 y/o) who has been a super health/fit guy was recently diagnosed with Stage 4 Prostate Cancer w/mets to local lymph nodes and multiple bone sites (around 5 including, scapula, ribs, and spine.) His PSA was about 261 when he had blood work completed on Feb 1st. He started to have trouble urinating, some fatigue (but nothing that was major at the time), and had an unrelated superficial blood clot in his leg. He was hospitalized due to poor kidney lab work due to his overly enlarged prostate blocking his ability to urinate. He spent about 1 week in the hospital which is when bone scans and CT were completed and when his overly enlarged prostate and metastasis were discovered. The news was the worst of my families life (me-the son, daughter, and wife). My father eventually had a foley catheter placed and 2 nephrostomy tubes placed to relieve the pressure on his kidney and to by pass the blockage from the prostate. My fathers kidney function has mostly returned to 100% and the swelling from his left leg went away with eliquis. My fathers spirits were up upon being able to return home. His biospy came back as Gleason Group Score 5 (aggressive) adenocarcinoma. The urologist has been really uplifting to my dad and reminded him that even aggressive prostate cancer is much slower than other cancers and adenocarcinoma is the most common type of cancer. My father had his first injection of Lupron about a week ago. He has some aches and pains in his back but cant quite tell if its the tubes or his actual back as he recently had PT. My father from what I can tell is going through the motions. He was so happy to be out of the hospital that his spirits were raised just to be in the comforts of home. I gave him a tablet with games and many different streaming apps to distract him as much as possible. My family encourges him to sit outside in his backyard. He easily fatigues when we take him on walks and its been hard for him to adjust to his new physical state as he had always been so fit. I and my sister sometimes notice that he is despondent as the initial joy of returning home has gone and his diagnosis has set in. My family spends as much time with him and we have all changed our schedules to try and spend as much time with him as possible. We support him as much as we can, but it pains us to see him lost as he has always been a fighter, but I also realize that this is normal. If anyone can share their stories and or other ways to help support my father as much as possible, my family would greatly appreciate it. Thank you!

  • Hi  sorry to read your post.  It is a shock to have that sort of diagnosis and not surprising that he gets down, but you all seem to be giving him great support.  My immediate suggestion is to try and keep him active (but not overdo things), also things to look forward to like outings, meeting friends and doing any hobbies.  Anything to give him hope going forward and less time to reflect on his own mortality.  Good luck and please come back if there is anything we can do to help you.  David

  • Hi  - you’ve come to the right place.  There are several Stage 4 members on here who are full of up to date information and suggestions for questions to ask your dad’s consultant.  Treatment for prostate cancer is advancing by the week and stage 4 has several excellent tool in the box.  Encourage your dad to participate in this site on his tablet. There’s advice and banter in equal measure and pretty much all of it is uplifting.   AW

  • Oh , and he can also read the various biographies of his stage 4 buddies.  Yes, to my knowledge, they’re all still here!   AW

  • hi, sounds very similar to my diagnosis. if you read my profile you will see what's happening with me so far . I was told about my cancer 10th jan this year. 

    I'had hormone injection about a month ago I feel a little better if a little fragile.  im currently in the canaries having a weeks rest. before my oncologist appointment next Wednesday so I'll be updating my profile next week. .with whatever information they give me.

  • Hello  and welcome from a wife whose husband was diagnosed with stage 4 prostate cancer in July 2020. He had similar problems with having to have a kidney catheter and did lose some kidney function. It has been a rollercoaster of a journey and despite several progressions and rounds of different treatments we are still told that there are more tools in the toolbox. Exercise and activity are important - we have made a conscious decision to get out and do things which lifts the spirits. It will take a little while for the hormone therapy to shrink the cancer which will ease some of the symptoms. It also takes a little while for the body to get used to the drop in Testosterone and there can be an initial increase in bone and muscle aches but this is normally short term.

    Hormone therapy works on the cancer no matter where it is in the body and puts it into hibernation. Has any mention been made of a treatment to actually kill the cancer such as chemotherapy or the addition of an oral hormone therapy to take in addition to the Lupron (my husband has been on this since initial diagnosis).

    To show you what therapies might be offered I have attached a link to a book which you can download for free.

    https://issuu.com/magazineproduction/docs/js_prostate_cancer_guide_for_patients_ezine.

    Please ask any questions and we will try and help.