Hello all my name is Ian.
So my journey began with a trip to A&E with a suspected stroke slurred speech,dribbling and unable to swallow and was sent for a CT head scan.Which they did not find signs of a stroke. However the did find multiple areas of bony lesions decreased to me as looks like it been eaten by moths. So was sent home and to go to the all day emergency care unit on Monday morning for a full body CT scan so after waiting around day was told that my scan results had not come back and someone would ring the next day New Year’s Eve which didn’t happen so give it until 2 on New Year’s Day and rang pretty sure you can guess what the diagnosis was.
The following day I received a phone call from the nurse who had treated my and asked to call in to discuss my speaking problem.Upon arrival I was given a full examination and a list of further test they would like to do.
Bone scan
MRI brain
MRI whole spine
Endoscopy
ultrasound guided prostrate biopsy ( the word I heard was ultrasound and thought that the one pregnant women have to see if it’s a boy or a girl) my I should have taken more notice of prostate biopsy part 
followed by MDT meeting in a week
After the meeting I got a call to as if I could come to the Urology department at 2pm. I was told that my PSA was 378,CT showed extensive lymph nodes,bone scan showed widespread Boney metastases andas undoubtedly advanced prostate cancer and given a staging of TX N1 M1. At this I had not had my biopsy so no Gleason score which I have still not received but something is telling it’s not going tbe a 1or2
They said they would like to start me on hormone therapy and give me a Degarelx injection with another due in 4 weeks then to move on to Postap every 3 months and was sent on way.
I had also received an oncology appointment for the following Wednesday were it was agreed that along side the injections to have 6 chemo treatments and to take Darolutamide tablets. All literature 2 weeks to the day from getting my first diagnosis. I can’t thank the NHS enough I know there are lots of problems but in my case I can’t imagine getting better results.
The worst part for me a being the 3 weeks waiting to start my chemo and full treatment. I I’ve read so many posts on here about people wanting for results for longer than I have to get to anywhere near the point I am with my treatment and my heart really goes out to you all. Stay strong every one.
sorry this as turned out to be a bit of a long post for a introduction post but it the first time I’ve written it all down.
Thank you and great forum name by the way 
Thank you for the info I think you gave someone else the same the other day which I read and helped me put 2&2 together. I will follow you advice on keeping a diary. So far so good on the side effects but the not stated the tablets just about to have my first lot.
Hope the appointment brings good news and you husband is doing well. Like my he’s lucky to have a strong supportive wife
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Hi David.
Thank you for the welcome and tip on the diary I will take a look
Ian
