Raised PSA after Radical Nerve Sparing Prostatectomy’s

Hi,

I’m new to the forum so please bear with me if I’m a bit all over the place.

I’m 67 and was diagnosed with PC in September 2017…..Gleeson 3+3 low grade with a PSA of 4,I went on Active Surveillance with PSA tests every 6 months & biopsies every 2, my PSA levels fluctuated up and down over the years but started to increase in 22/23, July last year (24) I had a template biopsy and my PSA had risen to19, I was called into the hospital and advised my Gleeson had now changed ( 4+3 ) and that a procedure was advised as there was a suggestion from my MRI that there was a small “Cribiform” ? pattern within my prostate and that it was very large at 122cc I was told that the cancer was still within my my prostate but the time to act was now.

After consideration I went for DaVinci surgery on October 19th 2024, this was, according to my surgeon a complete success and there were negative margins from Histopathology report.

After the Catheter was removed after 2 weeks I began my pelvic floor exercises 4 times a day, I worked hard and have now achieved full continence at night and 1 Tena Level 2 pad per day, the ED is work in progress with a Soma 2 pump but again things are slowly improving in that department.

Now to the crux of it…on my follow up consultation with my surgeon after 8 weeks I was told my PSA was 8.5!… no where near where it should be, I had a further PSA test 1 week after that and that came back at 9!….I was then referred to an Oncologist in the private sector who told me various scenarios and referred me for a PMSA scan and a further MRI, as advised I had a further PSA test in the private sector 3 weeks ago which came back at 0.6!!… obviously I was encouraged to say the least by that but knew I would still have to have some form of treatment as it was still high, imagine my surprise when last week I had another PSA test with my GP that came back at back at 8.2.

I have a follow up consultation on the 31st to discuss everything and to learn the results of the PSMA, MRI and these conflicting blood test results, I’m struggling to get my head around what’s going on with the bloods, I have seen 2 surgeons and 1 Oncologist who have just said “ There’s something strange going on and we’re not sure what it is”….hopefully the PMSA will tell me and I’m expecting the worse.

I'm sorry it’s been a bit of a monologue, but as we all are with this disease I’m frightened and I don’t know which way is up.

Thanks, I hope someone can help me understand things.