Hello

Hello Woolly66 . From your profile I see that you now have a plan but I hope you don't mind me adding a word of caution. The hormone therapies put the brakes on the cancer but they do not kill it. This is done by things like the radiotherapy and the chemotherapy. Could it be an idea to speak to the radio oncologist and find out what he is suggesting as this might help reduce your husband's pain and allow him to come off the morphine. My husband had severe pain from bone mets and he finished a 5 day radiotherapy course for them last Monday - the pain has reduced considerably already and he has halved the morphine patches by 50% so far. Also 4+ years ago he had radiotherapy to the whole of the pelvic area and to date this has dealt with the cancer there.

Hi again Woolly66, glad you have got a plan in place, although I agree with Alwayshope that it would be good to get off the morphine if he can.  The cancer journey is a rollercoaster with highs and lows.  The trick is to make the most of the highs and survive the lows.  I am 7 years into this journey and currently back on RT but making plans for once the treatment has finished and I feel ok again!  Your positive attitude will help you no end. David

Thanks for your reply. My husband cannot have targeted radiotherapy as his whole pelvis is a black mass with cancer.He has some black dots on top of femur, L5 and upper rib at the back. He is now relatively pain free which is why we have put the radiotherapy for pain on the back burner as they have said he can have at most 3 sessions of this ( it is very high dose radiotherapy at the RAMPART clinic) so we are keeping this for later on. Again we are not having chemotherapy for now as he is extremely well and we want to live life to the full. It is very aggressive but his PSA is down to 16 and hopefully with apalutamide it will come down further. He will be monitored 4 weekly with blood tests so as soon as PSA starts to move upwards we will consider the other options. He is now back to long walks,and even managed a short bike ride at the  weekend and has been back on the rowing machine. 

I wish your husband well as I see you are embarking on another course of treatment. 

Take care

Thank you very much for your message David and I hope you can see the reply to Alwayshope. I wish you continued progress with your treatment.

Take care.

It sounds as if everything has been covered and more importantly you feel in control at the moment. Quality of life is so important both physically and mentally and we have always said that this will determine whether we embark on a course of treatment. We have just had a little blip with hubby developing a pulmonary embolism over the weekend so I expect this will delay other treatments for a while.

Keep doing what you are doing as it is obviously working for you.

All the best.

Thank you.So sorry to hear about the PE, sending good wishes for a speedy recovery.

Take care