Hello - New to group

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Hi All just joined the group for help and support.

My father died at 86 years old in September of prostate cancer so at 57, I had a DRE and PSA check in December.  PSA was 1.47 which is fine but DRE showed something suspicious so was referred for an MRI.  Had the MRI last year and apparently the suspicious nodule was nothing but MRI picked something up the other side of the prostate which is possible cancer, so now awaiting a biopsy at Stamford hospital in Lincs.

Really struggling with this, my anxiety has been off the roof and and since I saw the specialist last year, I seem to have developed sciatica and have aching backs of knees and ankles which are alleviated by resting or by exercise.  How do people cope with this, I have a wife of 35 years and 3 adult children and don't want to leave them behind any time soon. 

  • Hello  

    I have responded to your post on the "Biopsy" thread. I can understand how you feel with the family history, Regarding anxiety, we all suffer from this to a degree whilst waiting tests and results. Please feel free to contact our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) for some extra help and support with the anxiety.

    Best wishes - Brian.

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  • Hi dedward67 and welcome to the group. You've come to the right place for advice and support.

    When I read your post I thought "that was me 18 months ago"! I was diagnosed in the spring of 2023, being in virtually the same situation as you. Family history, low psa, dre suspected nodule etc. Anxiety off the scale as well.

    Have you had a biopsy yet? This will tell if it is actually cancer or not. It might not be.

    Even if it is, no-one wants this news but I now look back in a positive light. In both our cases it has been caught early and if treatment is needed it is likely to be completely curable. Medical science has moved on and prostate cancer treatment success rates are extremely high with an early stage diagnosis. 

    In my case I had surgery in September 2023 and have been completely clear since then. Try to stay positive. The worse part is waiting for test results.

    Come back and let us know the results of the biopsy. Lots of people on here ready to offer support.

    Feel free to ask me anything.

    Cliff

  • Hi Cliff, thanks for your reply, it's always re-assuring to hear of others who have gone through the same thing and more importantly come out the other side OK.  I had a specialist appointment regarding the MRI results a few days ago, so still awaiting a date for the biopsy so nothing is confirmed as yet, so at the moment I only know there was something suspicious on the MRI which could be cancer.   Out of interest what surgery did you opt for?  My consultant mentioned that if the biopsy was positive, it was likely to be early stage cancer, and options could as active monitoring (not too sure about this one..), Brachytherapy, Radio therapy or radical prostectomy though for the brachytherapy and prostectomy we would have to travel 70 miles or so to Addenbrookes. 

  •   I have also answered your other thread, but just wanted to add its way too early to start thinking about treatment options. The fact you haven’t had a biopsy date indicates to me that your consultant isn’t that worried about you.  Forget dying and get on with living.  I reckon you will beat your father’s 87! David

  • Thanks so much for all the replies, so glad I joined this group, I feel some of the burden lifted already, "a problem shared" as the old adage goes. 

  • I had radical prostatectomy. More than happy to go through all the details with you, but can I just echo David's comments that it's a bit early to get into the possible treatments. The biopsy will give a better indication of which options are available to you and there is a fair chance that you won't need any of them.

    Cliff

  • Hi dedward67,

    It's natural to worry especially with your father having passed away last September, however until you have had your biopsy, there's no confirmation at the moment that it is PC.  The fact that your consultant has said if it is cancer it's likely to be early stage means that it would be more than likely be curable & lots of possible options which are increasing all the time.

    So, although it's easy for me to say, for the time being, try to focus on the here & now & don't spend time & effort researching treatment options for something that may not be needed.

    Best Wishes

    Brian