New, low psa but lots of bone pain and worried

Coccyx- I thought you were misspelling something lol. I had to look it up earlier. It is the tailbone for others who didn't know.

No I didn't have pain there. But I was aware of pressure and fullness in my large intestine many times a day. I realize looking back, that that my enlarged prostate was pressing on the large intestine where it passes by. Taking a bowel movement would always relieve this pressure.

Didn't want to get graphic about it but thought it might help if it relates to your situation.

The fullness I’m getting in my rectum is purely when I’m sat down. If I’m walking around there is no fullness or tailbone pain. That’s why I wonder if I’m pressing on something when I sit down.

Hello Yorkshire boy . My husband gets a lot of pain in the pelvis, coccyx and bum area which is due to arthritis. His osteopath has advised him not to sit on hard chairs and to use a donut cushion which does help. Besides manipulation by the osteopath I also give him regular sessions with a massage gun to the bum, thighs and calves plus he has exercises to strengthen the relevant muscles. He also suffers from constipation thanks to the hormone therapy which leads to a fullness feeling when sitting and straining to go to the loo doesn't help matters - it is better to try and keep the bowels regular with diet but he does have to resort to something like DulcoEase at times.

My husband does have advanced metastatic prostate cancer but does not have bone mets - we know this because he has regular MRI scans. Others on the forum have given good advice but the way forward would be to try and get either scans or X rays so that you can find a solution and make life more comfortable for you.

Hi Yorkshireboy, and another warm welcome from me, I too have dull aches and pains in my lower spine,  pelvis and sacrum, osteoporosis, caused by cancer treatment, it is also a side effect of low testosterone, which you've been diagnosed with, it's understandable the thoughts you are having, and the stress and worries they cause, but stress and anxiety can cause physical issues and magnify existing ones. I agree with the guys,you should be asking your GP, for a scan, or go private, an MRI would be £450 £600, and a DEXA "bone scan" £150, though you'd need a referral from a medical professional. Best wishes.

Eddie 

I'm not medical so can't comment on what this is/isn't.  Personally, after seeing a urologist on the 14th December after a GP referral from a DRE and having a bit of a meltdown after,  I started getting some dull aches, sometimes in my coccyx, but mainly in my lower legs or ankles, and what I can only describe as very mild tremors in my lower leg.  These have improved a little since then. I have had an MRI which found the suspected nodule from the DRE was nothing, but did flag a previously undetected lesion I need to have a biopsy of.   I mentioned to my urologist about this and she confirmed there was nothing on the MRI to indicate any cancer spread and my issue was possibly sciatica brought on by the anxiety of the prostate cancer journey.  I know when my urologist gave my the MRI results (which I hoped was the end of my prostate journey) and said they found the unrelated nodule that would need a biopsy, my stress levels went into overdrive again and I had a lot of leg pain that day. The best ways I find to alleviate it is either resting (legs up), exercising/stretching out the muscles or relaxation techniques to relax the muscles.   It's definitely a lot worse when I'm stressed, so I guess it's the muscIes tightening up.  I  don't know if this is similar to your issue or not, my PSA is 1.4.

Hi

thank you, thats interesting regarding the anxiety of it all. However, for me the pains started first which then led to the anxiety afterwards. But i definitely agree i am feeling worse due to anxiety. 

i have an appointment with my GP in the morning. How should i approach this to best ensure i get taken seriously. I will ask for another dre tomorrow as a starter. If the GP is still adamant he cant feel anything how do i get an mri?

Will i need to see a urologist first or can my gp order one? Im not sure how this works.

As a last resort, I am in the westfield health scheme so can claim back any consultation fees but i have to get a referral from my GP to see one. I believe if i get my GP to refer me i can get a consultation who can then get me an mri. I am assuming its a urologist i need to see?

Thanks for your reply. Thats very interesting regarding the side effects of low testosterone. The gp wants me to start on testogel but until i know what is causing all these bone pains im not going near it.

thanks

Hello Yorkshire boy 

Interesting Questions. So where I live (over 'till in Lancashire ) we have a brand new all singing all dancing Community Diagnostic centre - MRI / CT / etc the works and you can get a referral there the same day/week - however the follow up takes a bit longer.

* Here's a link for you that might help convince your GP you need an MRI -NHS - Diagnostic Services when NOT on the Cancer Pathway. Surely your symptoms apart from a DRE would suggest an MRI is needed.

* As you say if he won't play ball on the NHS try your private insurance however at this point not being medically trained i am unsure who needs to authorise it - your GP should know.

I hope this helps.

Best wishes - Brian.

Hi Yorkshire boy, your GP seems very confident you haven't got cancer, as the recommendation of  testogel would suggest, and can I ask, has hypogonadism or osteoporosis ever been discussed.

Hi eddiel

Testogel was discussed as i have low “t”. Osteroporosis was never discussed. 

the problem with gp’s is they see a normal psa and  using the nice guideline think everything is ok. I just want to be sure that i dont have one of those agressive prostate cancers that dont show up on a psa. I have been getting a “fullness” feeling in my rectum lately and ED which could be signs. I am also 54 which is also a risk. Something is very wrong with my bones in my pelvic region and i want to know what is causing this. 

thanks