Hi,
I am on this forum since a few days and I have decided to present myself.
I turned 60 in October. I am a French native living in Montreal (Canada). I have a 19 years old son and a wife a little bit younger than me. I am still working but will be retired at the end of 2024.
My cancer was diagnosed in March 2023 after a biopsy. I had a radical prostatectomy the 6th of June 2023. The pathologist's analysis of the prostate confirmed that I had cancer with a Gleason score of 8 (4+4) with a pT3aN0M0 classification. I had almost no incontinence after the surgery and the physical recovery was quick (I was and I am still in relatively good shape).
All my follow-up tests since the operation were around 0.01 (and even 0.006 in January 2024). In July 2024, I changed laboratories and the test result came out at 0.03 ng/ml. I just redone a test at the end of October (in the same laboratory) and I am now at 0.05 ng/ml... (the last test was done the day after a Covid vaccine)
The next test will take place at the end of January. Obviously, I'm stressed and I'm afraid that my cancer might be back very soon.
Thanks for reading me.
Pierre
Hi Stevecam,
I'm not sure blame is actually attributable to either hospital admin or Royal Mail, but more the old fashioned processes used.
I'm not sure what processes are used in hospitals, but when I used to work for a large organisation, they had an agreement with Royal Mail that because of the volume of letters issued, RM would collect it, but they then had several days to actually process it. All this then allowed a lower postage cost. This meant a letter could appear to have been written & signed in a reasonable timescale, but the delay in it entering the 'proper' mail system often meant quite a large time delay.
I have tried in the past to get things sent by email from the hospital but a look of horror then passes over their face. Hopefully one day though it will become the norm for digitally aware patients.
Glad to see that your answerphone message bore fruit & you now have an appointment.
Best Wishes
Brian
Last year I was seeing an orthopaedics team and an orthotics team who were based on different floors in the same building. One corresponded with me by letter and the other by email. My oncology team set appointments by letter but all the appointments are by phone. Contact with my GP surgery works through an app. That actually works really well. It would be great to have one system that works for all of us, but in the meantime building a relationship with the staff can help.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007