Husband just diagnosed with advance prostate cancer.

Hello Liv88 and welcome to the family. The drop in Testosterone can cause side effects soon after administration but I think your husband's side effects are more likely to have another cause. Have you taken his temperature and blood pressure (it is a good idea to monitor these just to know what his base line is) As we are not medically trained then we would normally advise you to get any sudden change in health seen to by a doctor. You could also phone up the Macmillan helpline on

0808 808 00 00. 

When did he have the biopsy and was it transperineal or transrectal?

Please let us know how you get on and then we will respond more fully on the advanced prostate cancer diagnosis.

Good evening Liv88, My husband has had a similar diagnosis to yours. We started this journey in March and got the full diagnosis in May.  He was put on Zoladex which started working straight away, in July he started alaputamide 4 tablets a day which brought his PSA down even further and has just completed 20 sessions of RT.  He is doing well on both the Zoladex and the tablets. Normal sweats then shivering which is copable. It’s an emotional journey and we have good and bad days but always trying to stay positive which is key. This forum is a godsend, there are so many amazing, knowledgeable people on here who will keep you right and are always there. Any questions or worries fire away. Best Wishes.

Majestic

Hello Liv88 

I have just read your post and confirm I agree with Alwayshope as his "side effects" are not the usual ones from Hormone Therapy.

If you have not already spoken to a GP or his Urology team I would advise you to ring 111 or go to your nearest A & E as soon as possible - please don't leave it.

Please let us know how you get on.

Best wishes - Brian.

Hi Liv, 

and welcome. It does sound like maybe he has got run down and maybe caught something as well: Saying that the shock of diagnosis and starting HT does have a massive impact on a person, physical and mentally. My OH became very withdrawn and stopped eating properly in those first few months.it took a while to adjust. Things settled down once his treatment plan and daily routine fell into place. The fatigue and learning to manage the side effects can be a big adjustment. It’s a lot to take in. It’s good that you found this forum as that will help you with questions and support. 
L 

Hi Liv88 , sorry you have joined our club and that the treatment or something is making him feel so unwell.  I agree with the others who have said get professional help asap.  I think most of us on HT get ‘off days’ but your OH seems to be extreme.  Is he normally optimistic or pessimistic?  I just wonder if he is still in shock and sleeping is his defence mechanism. If it turns out to be the HT, then slowly he needs to change his habits, like getting up and sitting in a chair rather than bed. Then going out for a short walk.  Each move will improve his quality of life.  Do keep us posted and ask any questions. Best wishes, David

Thank you Alwayshope, his temperature is mostly normal, it was a transperinal biopsy. I am awaiting a call back from GP surgery, he does seem a little brighter today and hoping he will eat something.

Thank you Majestic, it is good to know there is such good support from this Forum.

Thank you Millibob, he seems a little better today but I am waiting for GP surgery to ring back as specialist urology nurse said that should be my first call. I will ring 111 if his symptons worsen.  Good to know there is such good support from this Forum.

Thank you BarryW, I am sure things will get better and good to know there is such good support from this Forum, much appreciated.

Thank you David2017, I have left message with GP Surgery and hoping to hear back from them but I will ring 111 if he gets temperature.  Good to have such good support at this difficult time.