5 yers after
After radiaton and hormone therpy 5 yers ago its been a journey with ups and down. My PSA is Ok, (0,15) but it feels like strange things are happening in my body. It feels like creeping silent worms in the pelvic, no pain, but a kind of weird feelings which is difficult to desciribe. My GP tell me not to worry, its probably radiation fibrosis, she say its something I have to adopt and live with.
I manage daily life, at the age of 68 I stiill go to work every day but emotionally its hard to cope.
If someone recognize this phenomenon Ill be happy to share experiances.
Ollis
Hello Ollis
I've finished my cancer treatment for stage 2 prostate cancer and I'm back at work for about 9 months, you mention strange feelings in the pelvic area, well your not alone I thought it was just me but every day they is a constant ache, and when I've told the doc he looks at me like I'm a moron, more to say you're fine, yes my psa is dropping from where it was in January, but I've had to drop my hours at work for this constant feeling of fatigue, is this normal, any how hope things work out good for you
Indie
Hello Ollis (Ollis)
Thank you for posting, although I am so sorry to find you here under the circumstances. I have checked our resource bank and we do have a section on the after effects of pelvic radiotherapy and this is attached in this link-
i have had a read but your symptoms are not shown!! Lets see if anyone else has the same issues. At least your GP is aware - but I can still understand your worries.
I have noted that you are finding this hard to cope with and Macmillan do offer free BUPA Counselling and here's the link should you think this would help:
i do hope you find the above helps - if I can do anything else for you please let me know.
Best wishes - Brian.
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Hello Ollis.
My husband is 4 years post whole pelvic radiation and is good at telling me about any unusual aches and pains which sends the nerd in me looking to see if and what we can do about it. He has recently had a bad bout of gastroenteritis for no apparent reason although we put it down to a bug he might have picked up, but it did take a little while. This led me to late effects of pelvic radiation which can be varied as indicated by the attached article - I am not advocating their services as I have no personal knowledge but what is suggested is that you can help yourself with exercises and diet depending on what problem is manifesting itself. I am a believer in 'you are what you eat' and maintaining a good balanced diet and gut biome helps with some of the side effects from the radiotherapy as well as improving the immune system. Another article seems to suggest that doctors can be too dismissive of the effects that it can have on quality of life so it is up to the patient to push for a referral to a physiotherapist and possibly a dietician.
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