My partner who is 47 who I've been with for 18year and have a beautiful 4 year old girl with has just been told he has advanced prostate cancer. This is a huge shock because he had no symptoms until end of April/early May when he suddenly couldn't pee very well. We had him checked for UTI and that came back negative. He was then made redundant in mid May and started a new job in June. This probably distracted him a bit from the issue. Things ramped up a bit and the dr did an exam and said his prostate was enlarged and sent him for a PSA test. This was 26.59 and told to repeat in 2 weeks. However things got a bit worse and they though it was prostitis and 2 weeks of antibiotics given with Tamsulosin and a follow up appt made for the day the abx ran out. GP wasn't happy so did An urgent referral. Urology called and wanted another PSA test hut partner wanted an MRI and they agreed. Same day appt was made and 2 weeks for results. 1 week later GP called with the devastating news. Advanced prostate cancer thats in the bones (bone scan automatically done with MRI due to age) The cancer has spread to the right hip, femur, pelvis, lymphnodes, seminal vessels, and another bone near is butt. Biopsy done on Tuesday and a genetic biopsy but CNS said we are looking at grades 4 or 5 (worst case for aggressive) They also want a full body scan to check for other areas for cancer and a bladder check. They said its not in his spine which is good. He also starter Dergarlux injections on Tues and was given a loading dose. They are talking about triple therapy, hormone injections, hormone tablets and chemo. Has any had this combination? Anyone still leading a normal life with advanced cancer? I'm absolutely devastated and worry the affect this will have on my little girl.
I'm so sorry to hear this, but it sounds like he is doing ok? My OH has also started having hot flushed today and that's only day 2. I am hoping that its because of the loading dose and the smaller monthly doses will be less. I am trying to take one day at a time to. The initial shock made me jump to the end and I went into grief mode/ shock. Good luck on your journey too and hope you have a lovely holiday 
Good Evening Orvy
As you can see, we have am amazing Community here. May I make a few suggestions for you:
* Every contact you make during this cancer journey - CNS, Consultant etc, take a note of their contact details, direct telephone number and e-mail contact details. (You never know when you might need them).
* If you live in England, download the NHS app and get him registered on it. Once it's up and running ask his G P for FULL access to his online medical records. You will then be able to keep an eye on what's happening on his medical records.
* Some of us keep our profile updated - it helps others knowing where we are with our treatment and acts as a reference so you know what's gone on during his journey. (You can read mine by clicking on my user name or avatar). To do this on your home page click on the icon of the chair (top right) then "Profile" and then "Edit". Once you have written something remember to click on "save".
I hope this helps - if you need anything just ask.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
My OH has also started having hot flushed today and that's only day 2.
My hot flushes (and they were bad) have been cured by taking Sage Tablets. They don't work for everyone but they do for me,
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
I will ask him to try this 
thank you
Hi Orvy
im really sad that your partner is 47 with pc its so unfair. My partner was 56 when diagnosed and also quite young for this level of PC. He started hormone treatments really early and before some scans, so I’m not sure where he is with spread, they said hormone treatment could have shrunk it back so that it’s not visible on scans . Statistically he should have spread as his initial PSA of 115, but nothing was visible except both seminal vesicles. So scary times at the start.
Now a year after treatment and continual hormone treatment, things are good . His life has changed of course, he finds regular exercise has helped him a lot as that has built up his strength. His treatment knocked him back at first, but he has done everything he can to push forwards and regain his health after. He has no cure, but is determined to live his life to the full. He didn’t have the triple treatment, but full pelvic RT plus nodes and lower bones in a pre-emptive strike to get everything that they suspect is there. It’s taken a year to adapt mentally and physically to where he is now and recover to a point where I believe he can go on for years to come. One advantage of being young is that your husband will be in a great position physically, he is unlikely to have any other pre existing problems that older men could have. He can take some full on treatment and hopefully recover well and get more from life after. Read my bio for MrBw there maybe something helpful to you.
Best wishes to you both
Lorraine
Hi Lorraine
And that's where sometimes I struggle to make any sense of this cancer.
. Statistically he should have spread as his initial PSA of 115,
My initial PSA was 182. I am a T3aNoMo and a Gleason 9!! No traceable spread on a "Curative Pathway".
I got my PSA reading this morning at 0.29. I've had my last Hormone Injection after 3 years on HT - I feel great - but just sometimes I ask myself "how have I this far without any issues?".
I just consider myself as a "lucky boy" (having almost died with CKD brought on by the Prostate Cancer!!).
The advantage MrBw and Mr Orvy have is they have been diagnosed at an early age and are young enough to fight this. As you said in your post, if you can overcome the mental and physical challenges it brings, you are half way there.
Many thanks for your continued help on the Community.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi Millibob
I know it’s weird, I guess statistics always have a small % that escapes the norm. Like men in their 40’s are unlikely to have advanced cancer “ statistically “ - men over 100 PSA are likely to have metastatic spread. Hopefully you are in that tiny % and maybe Mr Bw fights if off too?. Bw is totally focused on what he’s eating and exercise now, in one way he’s fitter than he’s ever been, he’s certainly trying hard to be in as good a shape as possible. Totally changed man from 2 years ago.
I’m so pleased that Your PSA is still dropping . Are you now completely off HT? Please tell us how it feels to get the testosterone flowing back, must be amazing!
L
Good Morning Lorraine
I had my last 6 monthly HT injection on 7 June 2024 so this should be out of my system by 3 December 2024. It will be interesting to see how I get on after that. I think it will take a further 12 months for it to exit my system and for me to build up some testosterone (plenty of time to sell your shares in Kleenex tissues 
).
I am still on Sage Tablets for the hot flushes, fighting (and losing) the Battle of the Bulge and as for any action down below - forget it - it's as dead as a Dodo!! (My Lorraine appears to be happy with the situation 
). I've overcome fatigue and can only wait and see what the New Year brings.
I guess statistics always have a small % that escapes the norm.
Yes, it's great knowing I am one - BUT and it's a big but - it's always at the back of my mind.
I have been on the Community for 28 months and a Community Champion for 12 and to be honest nothing about PCa surprises me anymore. Everyday is a "school day".
Onwards and upwards!!
Best wishes - Brian. 
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
