Hi Chrisboard, whilst I can give you no advice on which way to go with your treatment, if you look for my thread on here called post operation, I have written everything I could about my own experience of radical prostatectomy from when I woke up to around 12 or 13 days later, you may find this helpful in some way as I don’t hide anything about my experience and it may give you some idea on what you may be looking at for yourself.
Best of luck in whatever choice you make
John
Hi Chris and welcome to the forum, can I ask was your consultant surgeon from urology or oncology and have you talked to anyone about other options as to be told surgery will resolve your bladder issues is a very bold statement. PS never had surgery but did have a TURP, 30 minute operation done under an epidural 60 hours in hospital with a catheter, removed on day three, was able to pee three times and home, ten weeks of retraining at home to get to a point I was happy with, best wishes, Chris I am not against surgery, I just want you to be aware of all your options
Eddie
I totally agree with eddiel
I assume that you have been on active surveillance for the past ten years? (prostatectomy after radiotherapy is more difficult).
anyway, as Eddie said, TURP (prostate gland reduction and resection) is a much less invasive operation than gland removal. TURP does not require the urethra to be disconnected from the bladder, and does not remove the upper sphincter valve. The loss of part of the urethra and the valve means that you may suffer incontinence - certainly short term and possibly longer term, given your reason for having a TURP as the original suggestion to cure your current condition.
The TURP operation will mean that the removed “chips” will be examined in pathology lab and you will get a clearer view of the cellular structure of your cancer. This will provide better evidence for whether you need a full prostatectomy. In my opinion, given that you’re currently on option 1 (AS) , then going straight to prostatectomy is a bit like going to option 4 (the most invasive one) by bypassing the sensible diagnostic options 2 (TURP) and 3 (pathological assessment) before making a decision.
Maybe use these notes to write an email or use in your next discussion with your consultant?
AW
Hi Chris
Interesting question.
Just my opinion but I would go for turp only.
Would depend on your stats though.
I assume Gleeson is low.
What has happened to the PSA over 10 years, thats a long time to be on active surveillance.
What was PSA in years 1 and 10 and how much fluctuation between those years.
Has tumour size in mm changed much in the 10 years, what is tumour size now.
The main reason for asking is that if tumour size increasing and perhaps getting near the capsule edge then possibly surgery to remove
Best wishes
Steve
Hi again Chris, I noted your cancer is still stable after 10 years, which is great news, so assuming incontinence is the reason behind the decisions you are faced with. Can i ask if other possible reasons for your incontinence have been looked into and ruled out and do you practice voiding and pelvic floor exercises, and if you are ok sharing could you let us know your biopsy results and any others you might have, best wishes.
Eddie
Thanks ... for getting intouch... Sorry but I've not been told about voiding or the exercises !!!! I had a biopsy 3 weeks ago and it was the worst time of my life! No anesthetic, only jabs.. no privacy.. people walking about of all ages.. no screens at all.
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