Found out Monday love some positive advice

Hi Prestonbloke

My husband is 60 and recently had a Gleason of 3+3=6.  He chose to have robotic prostatectomy which was done this morning!  He is currently sleeping the night away while I'm reading through forum posts.  I read yours a bit earlier and decided it would be helpful to write a bio on my account to share my OH's journey so far.  If you click on my name you can read it.  

Best wishes

WW

Hi Fleet.  I just read your post and thought you might find my bio useful.  My husband, age 60, also was given Gleason 3+3=6.  His PSA was 5.5 but after biospy showed multiple grade 1 cancer in most of prostrate.  He had surgery today.  All is one the up x

Hi Winnie 

Thankyou so much for your post it’s been very helpful, I hope your husband recovers well from his op and wish you both all the best for the future. You didn’t waffle on as you put. it so don’t worry about that.  

 It is a very hard decision to make as to what treatment option is best and as you both must know-it’s emotional tough. 

I’m a bit confused when you say your husband had a Gleason score of 3+3 but cancer showed in most of his prostate  

After much thought I’ve decided to go ahead with surgery, I too was worried about having RT and if cancer came make then no option for surgery, I’m 69 btw and really don’t like the thought of after affects of surgery but it will have to be done and I’m sure after recovery it will be fine

My brother had his prostate removed 15 years ago with open surgery and has recovered well so there is good outcomes and reasons to be positive  

Thankyou again for your reply it really does help  

Roy 

Hi Roy

Its good to hear my bio helped. Re the Gleason score of 3 + 3 = 6, I’ve just double checked the meaning via Prostrate Cancer UKs website.  Basically, the first 3 is the score for the most prominent area of cancerous cells on biopsy. In OHs case this was 3 (low risk almost like normal cells).  The second 3 refers to the next most prominent area found. Again, for him this was 3, giving a score of 6.  This result was then given a Grade 1 as low risk.  He was also given a T score of T2?  This meant the cancer was probably still contained in the prostrate but in both lobes.  We saw an oncologist who felt it was wrong to say it was low risk in OHs case as there were so many samples across his prostrate positive for cancer, despite being similar to normal cells at this point.  Had the biopsy shown just one area of cells then Ibelieve OH could have tried brachytherapy.  Because it was spread around different areas, it wasn’t an option.  I think I’ve got this right. Active surveillance was also advised against due to OH having only just turned 60. My take on that is that although it may be slow growing, OH hopefully still has a good 20+ years to go and during that length of time the cancer could progress or spread out of the prostrate. It was emphasised that by removing the prostrate now, it could be curative. Obviously there are no definite but he came to the unhappy conclusion that it was better to have it removed now and hope for the best, leaving radiotherapy as an option if it returned later down the line.  Personally, I was also a bit worried about the ‘perinueral invasion’ on his biopsy result. This meant that the bad cells were close to or in the nerve which, after reading online (maybe not on from a trustworthy source, I can’t remember) Igave a higher risk of the cancer spreading out of the prostrate along a nerve pathway.  Having sad that, the surgeon (who seems very knowledgeable) spared the nerves so I really hope there aren’t any little cancer bits inside them.  Time will tell, but for now the prostrate is gone and OH is on the road to recovery from the op. They are very strict here in Spain so I can’t update his progress until this afternoon when I’m allowed into ICU to see him for half an hour. He has his phone with him, unless nurse Ratchett has put it out of reach so he rests!  

Hi Winnie 

Thanks for the reply that was very informative and I understand more now. 

My 3+3 gleeson was also grade 1 and confined to left side of prostate, brachytherapy was never mentioned as I option for me from the consultant, I will ask the Macmillan nurse about that. 

Im awaiting a pre assessment from the hospital at the moment  

I hope your managing to get some rest yourself and hope your husband is feeling better when you see him this afternoon. 

I don’t think every place offers brachytherapy so it’s definitely worth asking about in case you want to transfer somewhere you can get it if it’s a suitable option. Good luck. I’d be interested to know how you get on x

Hello Fleet 

I hoe you don't mind me sticking my oar in here but we have a resident brachytherapy expert on here (been there- done that) so I will "tag" Alpine Wanderer to thus post and I am sure he will get back to you.

(Like me AW is on holiday at present but he will reply).

Best wishes - Brian.

Currently leading a hike, but will look in later …. AW

Hi Grundo, my Gleason went from 8.20 to 9.82 and my adeoncarcinoma from acinar to intraductal from biopsy July 2022 to TURP Feb 2023 while on HT Prostap.

Eddie

Hi eddiel

Thanks for the info and hope that things Ok for you at the moment.

I have read before about adencarcinoma and  intraductal but I think the latter is fairly rare.

I think normally adencarcinoma .

Best wishes

Steve