What to expect?

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Hello everyone,

My dad was diagnosed with prostate cancer. We found out last week (thurs) its metastic and has made its way to his lymph nodes and there's a small focus on his bone. The doc who informed us of this has said he will be put on hormone treatment and then potentially radiotherapy. 

As the patient and as the carer, what should we expect from here on in? There hasn't really been any one person to talk to as of yet and we (mostly me it seems) are quite anxious. 

Everything seems unknown and its such a scary feeling.

Any advice would be most appreciated, it might help me unlock my jaw from the effort of trying to hold my emotions together! 

  • Hi Oshak,

    Firstly, you will get many responses and support from this site and you have definitely come to the right place. As a wife of a man with metastatic PCa, we have been on this journey 3 years in August. 

    The hormone therapy works very well at reducing testosterone, which prostate cancer needs to be able to grow. The side effects are normally fatigue and many have hot flushes. 

    Of course you are anxious, that is natural, but this cancer, even if deemed to be incurable, is definitely treatable. My husband is not in the best of health from other problems and yet still here nearly three years on. His initial psa was 1200 and reduced to an acceptable level very quickly after his first hormone injections. Your dad may be offered monthly injections of Degaralix but if he has too much soreness from these, he can go to the three monthly Prostap which my husband is now on. 

    Take a deep breath and unlock your jaw.. Let us know more details such as initial psa, your dad's age, Gleason score etc, if you know it and this will enable a more detailed response from the wonderful guys and gals on this site. I would also suggest someone always accompanies him to appointments if possible, as there is a lot of information to take in.

    Best regards

    Gina

  • Hello  - A warm welcome to the online Prostate Community - we are a friendly bunch!

    I am so sorry to tread of your dad's diagnosis - however he's started treatment which is great. The Hormone therapy will reduce dad's testosterone (the food for the cancer) and his PSA will drop quickly. However there are side effects - we don;t get them all. at this moment in time I would just try and keep him as fit as possible as fatigue will be lurking in the distance somewhere.

    To help us help you can I ask you to update dad's profile to include his Gleason Score, Initial PSA and TNM stage. To do this on your home page click the icon of the chair (top right) then "profile" and then "edit".

    I am on my own Hormone Therapy /Radiotherapy journey and you can read my story by clicking on my avatar (I did have a few issues - you dad won't hopefully have these).

    Feel free to ask any questions you may have - however trivial - you will get answers.

    Best wishes - Brian.

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  • Hi Oshak.

    Good evening and welcome to the prostate family we are all a very friendly bunch. 

    I am sorry to hear of your dad's diagnosis the Hormone Therapy is the first tool that is used and you will see his PSA drop considerably.

    I was to diagnosed last June with a PSA off 1000+ and this has now dropped to 0.2 following my Hormone Therapy (Injections & Tablets) 

    The diagnosis came out of the blue to be honest and the consultant didn't seem to happy with things.

    But like in 1998 when I suffered a Stroke and B/I everyone was very negative from day one but I am a battler and the battle has begun once ages!!!!

    We do have lots of info and advice on our site we also have many members who I am sure will be in contact with you shortly.

    Please please come back to us if there is anything that we can help/support you with????

    Prostate Worrier.

  • Hi  ,  would be useful to see your dad’s diagnosis scores.  If it helps I was diagnosed 7 years ago with spread to lymphs, so try not to worry too much. Best wishes. David