Hi all. My name is Gordon, not FenderFan, and I'm from Scotland - and I do love my Fender guitars.
I have Advanced Prostate Cancer and was diagnosed in September 2020: I had no warning signs at all. After a torrid initial few months of being catheterised and then TURP surgery in May 2021, which worked, I've been on Prostrap injections every 3 months plus daily Abiraterone since December 2020, and aside from side-effects I've been active and have had no pain. My PSA was undetectable for the last almost two years - then last month I returned 0.1, and this week it is now 0.2.
My oncology nurse says that my case and treatment will now be reviewed - I suspect that chemo will be the next stage so I joined here to find out more and learn from the experiences of others. Our 3 grandchildren live with us now, following the death of our oldest daughter, where the younger two are 10 and 7, so at 71 years old I'm doing the 'Dad' stuff again and I'm hoping that I'll be able to keep on doing that even if I have to have chemo.
Good Morning FenderFan Gordon - A warm welcome to the online Community. (Telecaster or Stratocaster which do you prefer - my son in law has some too!!)
So sorry to read about the cancer but this is a great place for help and advice - we do have a dry sense of humour here but we aren't a bad bunch. I am sure your two grandchildren will ensure you don't suffer from much fatigue.
To help us help you can I ask you to add to your profile (initial diagnosis, Gleason Score TNM etc) To do this on your home page, click on the icon of the chair, then profile and then edit. (You can read my journey by clicking on my avatar - I am a member of the long term catheter and TURP club!!).
Feel free to join in any conversations and ask anything - no question is too trivial.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi Gordon.
A warm welcome from me. I know what you mean about concerns when the PSA starts to rise as my husband is walking that same path. Firstly don't think immediately of chemotherapy. There are other forms of hormone therapy which you might be suitable for and also radiotherapy which can be very successful. Your first step is to find out what is causing the PSA increase and they will do this with scans.
I expect your grandchildren are keeping you pretty fit which is good and I admire you, but sorry that you have lost your daughter.
Please come back with any questions no matter how silly you might think them.
Hi Brian
Thanks for the info - I'm a Tele man through and through, but I do have a Strat too!
I've added stuff to my profile - my Gleason score was 7 and I'm sure I've seen myself described as T1N1H1, though I'm not sure what that means. If chemo is next I worry about hair loss - I've been bald for decades now but I do have a fairly large white beard, and I do Santa for various schools and groups: and having the real beard makes a difference, so losing that would be hard to take (plus I'm not sure I want to know what is underneath it, and neither does my wife!).
Gordon
Thanks Alwayshope
I've been a bit wrong-footed by the sudden increase in my PSA, even though it is still very low, having been fairly 'well' over the last couple of years. I guess I'll have to wait and see what the professionals say, rather than jumping to conclusions.
Gordon
Hi Gordon FenderFan , Welcome to the Club!
Your team are on the case so no panic. Any rise in PSA is concerning but a rise of 0.1 could almost be a rounding error and is very small. It would help if you could find your staging info. To me your H1T1M1 doesn’t make sense, so would be best to check if you can and confirm. Let us know how you get on. Best wishes. David
Hello Gordon - sounds like you may well be a Bruce fan then (Not Robert but the Singer!!).
As Alwayshope above says it's early days yet in working out the next course of action for you - there are so many new treatments and advances in medication - it's not always chemo next stop!.
Thanks for adding to your profile - once you find your diagnosis - here's a link to tell you what all the numbers tn the TNM score are about - as David2017 said above - they ain't right!!
shop.prostatecanceruk.org/.../how-prostate-cancer-is-diagnosed
No worries about the beard - if I am right there are still 270 days to Christmas so you will be fine!!
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi David
I'll try and find out - why is it always a holiday weekend when you need info.
It has spread to my bones: spine, pelvis and ribs I think, so I'd imagine stage 4 applies. I recall a couple were '1' but I'll ask my oncology nurse at the Beatson next week. She said that two consecutive PSA increases, which I had over an 8 week period, was enough for them to review matters. Will post any new info I get.
Gordon
Hi Gordon. Welcome to the Forum. I am afraid I cannot provide any information really regarding your prostate situation as I had a prostatectomy 18 months ago and therefore our journeys are completely different. We do however have something in common - our love. To make those last two words clear - Fender Guitars. You know for me it is the name really. Since school days those two words have been magical to me. I only have one now and that is an old acoustic Gem. Nothing special as far as the rest of the world is concerned but for me it is my mosty precious of goods.
Gordon. I am a big fan of Queen and Brian May is famous for his Red Special. I am lucky to have seen them in 1986 on the Magic Tour but did you know that 'Crazy little thing called love' was recorded using a Telecaster. I organised a surprise 70th birthday party for my husband at a local taverna and supplied the music - got the whole room up and dancing with air guitars - the youngsters couldn't believe their eyes at all these 'oldies' rocking away the night - unfortunately the evidence is still on their phones. We are young at heart, if not in years.
Hubby has metastatic prostate cancer, diagnosed in July 2020. We have been through radiotherapy, chemotherapy and different hormone therapies plus we have been told that there are more options available so take heart that treatments are available and plenty more being developed all the time.
Whatever cancer throws your way, we’re right there with you.
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