(In)active surveillance

Hello David - welcome.  I expect you are feeling a bit anxious whilst waiting for the MRI results? If you have not heard within a reasonable time, can I suggest you contact the specialist nurse or your doctors to chase up the results. Not knowing and waiting for results is horrible. We learned very quickly that it is often necessary to actively chase up results and appointments! 

I do hope that the results are good for you and that you can continue with surveillance. That said, if treatment is now recommended, it is nowhere near as bad as we feared. They have to warn you about all the side effects but I have never spoken to anyone who gets every single side effect and most of them are manageable!

Good luck!!!!

Hi David

You don't give any PSA results which would help with advice given , the last 3 or 4 would be handy.

I presume that your previous MRI is showing a small tumour so it all hinges on what the latest MRI says.

Hopefully u can continue on active surveillance but even if treatment is needed it does sound to be curable.

Best wishes

Steve 

Hello DavidJL  Another warm welcome from me, although so sorry to find you here.

I think the advice in the posts above says it all. I do hope you are able to stay on active surveillance BUT if you do need to start on a treatment journey, things are pretty easy to tolerate these days and being a low Gleason the treatment (Hormone Therapy) would not be for a long period.

Feel free to join in with any conversations and ask any questions you may have - however trivial they may be.

Best wishes - Brian.

Hi David,

Nice to "meet" you, though sorry that you need to join this club of reluctant members. I too am a low-Gleason-score active surveillance person, though a tad younger than you. It was explained to me that active surveillance is for when the cancer is believed to be 100% curable. So glass half empty; we have cancer. Glass half-full, the professionals believe that if it becomes threatening, they can cure us.

Best wishes, I hope that your MRI scan reveals nothing of concern.

Sean.