Found you..

A warm welcome Tigerlegs .

I am sorry that you have found yourself here but you are in the right place to ask questions from people who have been there, done that and worn the T-shirt. If you would feel comfortable posting some of your Gleason, TNM .... on your profile page then this can help everyone to help you with more targeted information, plus it saves asking the same questions and saves our memories.

By the sounds of it you are in a good position for a cure so hold on to that thought. The treatment being proposed for you is also known as SBRT and has only recently been approved in the UK so I am not sure how many responses you will get from people who have had it, unless they were on the PACE trial. I have attached a link to some information to give you some background but results have been promising at the 5 year level. You have to meet fairly strict criteria to be offered SBRT so be prepared that you may be advised to switch to EBRT if you go down the radiotherapy route.

https://www.urologytimes.com/view/efficacy-of-radiotherapy-in-prostate-cancer-maintained-with-shorter-dosing-regimen

Please come back with any questions.

Good Morning Tigerlegs - Another warm welcome to the Prostate Community from me.

I am so sorry to find you here but it's a great place for help and advice - and even general chat. I can't say much more than has already been said by Alwayshope above. If you do put "SBRT" in the search box at the top of the page this does come up with some 90+ results and this will enable you to look at threads on the Community where this has been mentioned.

Feel free to ask any questions - nothing is too trivial.

Best wishes - Brian.

I have attached the most relevant link by other members.

 SBRT Cyberknife on the NHS 

Hiya Tigerlegs.
I’m being treated for T3e CPG4 locally advanced PC. I’m very lucky a) it hasn’t spread and b) I had the traditional prostate symptoms because, I’m told that if I hadn’t gone to the GP with them, I’d be blissfully unaware that I had cancer and as it has burst out of the prostate like a cauliflower floret, by the time I found out something was wrong, it would have been too late so, one fella really grateful to have the ‘waterworks’ problems to flag it up. That was late December 

I was on hormone treatment ( Bicultamide) on the day I was diagnosed and then a Zolodex implant after 3 weeks. I’m now on the PACE programme and I signed all my consent forms to undertake SBRT last week. I’m just waiting to be called in for targeting scans etc. The one I’m going to be treated with is the dual, where the cancer is targeted and the pelvic lymph nodes. As well as having a really good chat/info session with the researcher, I’ve read up on this and, according to my research of this is treatment in other countries - despite the standard procedural warnings of potential side issues with bowel and urinary functions, there’s less chance of them happening with SBRT and if they do, they’re likely to be less severe. Also, as well as SBRT treatment being over 10 days (5 alternate days) it appears to be more effective than traditional RT that would be carried out daily for 6 weeks. There is a caveat though. For this to work, there needs to be a clear path to the cancer, ie. No organs in the way. This is because they would block the ‘beam’ and potentially become damaged by the radiation. However, even if there is an organ in the way so, they can’t do ‘the full Monty’ they will be able to do an ‘SBRT light’ version (can’t remember the clinical name at time of writing), which would be carried out on alternate days over 4 weeks. So, still quiver than the standard. My prognosis has now changed to include the word ’curative’.

Hi Axel H,

I'm so glad you are posting about your treatment as it's really interesting. I've been gripped by the..."burst out of the prostate like a cauliflower floret,"  that had my eyes popping out of my head with the image, and I had to keep reading. I think you did a previous post about being asked to join this "Pace" program? . Are you Addenbrookes for this?  I really look forwards to following your progress and treatment.

L