Hi all, I'm new to the forum as have very recently been diagnosed with T2 localised prostate cancer, I'm still in a bit of a daze so haven't gotten round to asking what my Gleason score is. The news is still sinking in really. I've had the MRI, then biopsy and have now had my first chat about what treatment options to consider. The first chat was yesterday with the surgeon who said that for someone my age he would highly recommend surgery but having spoken to him in depth about this and the recovery process, I'm not sure if this would be right for me. He did say that the success rate is 90% which was the same as RT and that when they remove the prostate, they'd still check it as the biopsy could have missed something. That didn't fill me with confidence to be honest and makes me lean towards RT but I wont make a full decision until I've seen the oncologist next week.
I've got friends who opted for RT (external and internal) and they haven't looked back but their story may be different to mine so I'm somewhat in a quandary as to what to actually do. Did anyone feel the same way and how did you arrive at a decision? I've never been in hospital for any reason and the thought of having surgery is very daunting and the thought of what this actually entails is rather frightening to be honest, no point hiding emotion now really is there?
I went down this route as my Dad had advanced cancer of the prostate, he was of that generation who didn't get checked and when he did it was too late to get treatment/ They gave him 2yrs but he lasted 7 God bless him so the moral of the story is to get checked. I've told my brothers to do this and all of my mates as you just don't know.
Hi Celt1965,
welcome to the forum . The great news with T2 is that you are curable and that you have no panic in making a decision right away. So plenty of time to research and ask questions and no need to rush into surgery until you feel it’s right for you. There’s plenty of people here that will give you good advice. All choices have great success, I think it’s the after effects and recovery of each treatment is a good thing to look at as well .
You will find there’s lots of help and support here.
L
Hi Celt1965 , welcome to the Club! Being told you have PCa does put you in a daze, but it is great that you have been diagnosed so early and it is curable. Did you get any cancer nurse contact details in any information you were given? If so, I would give them a ring and ask for your staging and Gleason score. Also what is your age? Armed with this, the amazing guys (and girls) on this site will give you all the help you need. Good luck, David
Hi and welcome
I am in a similar situation to yourself only received my results last week T3a 4+3 age 64 and it is still not real as I don’t feel ill (as most others) . Following my meetings with the consultant I am going to follow their guidance and go down the surgery route . I just got it in my mind I want it out and at least I have radio therapy as a back up plan . But we are all different and the choice comes down to personnel choices .Good luck with it whichever option you choose .
Hi David2017. I've just logged on to my NHS Patient Portal page and my Gleason score is showing as 7, level T" with no cancer in the lymph nodes near the prostate. I'm 59, so hopefully whatever treatment I choose I'll be around for some time yet. There's so much info on the website and forum that I can see already there will be a lot of great support from people. Thanks very much for your response, I hope you are smashing whatever you're going through!
Hi Celt1965
I was diagnosed with PCa in 2020 and my initial reaction was to have surgery and get rid of it. However, du to other underlying problems, it was recommended I had RT and HT. I am happy that I went down that route and 12 months after finishing RT, I feel fine.
You can read my journey by clicking on the picture of my cat.
Good luck on whichever route you take.
Peter
Hi Celt. I suspect I'm a bit older than you but we have a lot in common. I had never had treatment in hospital before. My lovely dad also left it too late and waited until symptoms became bad (kept this to himself) but somehow managed to go another 5 years. Because of this, I've been getting a PSA test for the last few years - felt fine and no symptoms. I think it is important to talk to both surgeon and oncologist, friends/ relatives who have gone through this and scroll through this forum for relevant info/thoughts. Once you feel informed enough, your choice of treatment plan should become more obvious. Everyone’s needs are different. Good luck.
Hello Celt1965 - A warm welcome to the club you didn't want to join.
I can't say much more than the great advice given above. Take your time - use trusted sources for your information - Macmillan - Prostate Cancer (UK) but NOT Dr Google.
You will find some great threads on the forum for both surgery and HT/RT (don't forget you may be suitable for Brachytherapy) and many Community members have listed their personal journey (you can read mine by clicking my avatar).
If you want to know anything - just ask - nothing is too trivial.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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Hi Celt
Would be handy to have a PSA figure but anyway with a T2 I am assuming lowish PSA and Gleeson
Which gives you both options, surgery or some form of RT.
I had RT , was fairly easy and straightforward, didn't fancy the major surgery involved in removing the gland.
Just bear in mind 2 important points.
ED and urinary issues more likely with surgery but obviously not always
If cancer returns after treatment it is quite easy RT after surgery but difficult the other way round, surgery after RT but then obviously fingers crossed it works first time.
So u have time on your side so think about it carefully, u posted some good news about friends who successfully had the RT so do bear that in mind
Best wishes
Steve
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