Update from a tired wife

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Hi everyone,

just a wee update. As you know husband aged 56 diagnosed in May with PSA of 252, T3, N1, M0, gleason score 3 +4=7. Bone scan clear. Started on Bicalutamide for two weeks then Three monthly Prostap injections, Abiraterone also added in due to high PSA with a view to being curative. Had dreadful hot flushes but tried sage and fans etc to no avail so Consultant started him on Cyproterone tablets and has had no flushes since.  He got three gold seed markers implanted last week as preparation for radiotherapy and said it was every bit as uncomfortable as the biopsy but perfectly bearable.  Today he got his planning CT scan and three tattooes, one on each hip and one on the pubic bone (ouch) lol. starts four weeks of radiotherapy on 27 th November.  PSA down to 24. Just wanted to do a wee update in case any of this info might help anyone just beginning their journey. My husband i has always been relatively fit and although all of this came as a shock and he was extremely distressed by it all, he is taking it one step at a time and we are getting through it.  One thing I do find challenging, as well as amusing I might add, is how bloody awful the HT has played havoc with his emotions, he was almost hysterical at the thought of having to self administer a micro enema before the planning scan today and has to do a further 10 for first 10 days of radiotherapy. There was an extra one in the box so he had a wee practise last night and realises it was ,not that bad,.  The amusing part is that the other day he told me, and I quote, “I’ve done something, now don’t get mad” I was thinking jeez what could it be. He then went on to tell me he was watching a wildlife programme about Pangolins, which is one of the most trafficked little creatures, almost to extinction, so has decided to pay monthly to adopt one.  Maybe the upside of emotions running riot on hormone therapy? Seriously he was in bits over the poor wee creatures fate. I might bloody well adopt one myself! Lol.  I was also surprised by the bruising he has from the tattooes, although he never felt a thing. What a journey this whole thing is, I don’t know who is more exhausted me or him! 

Love to all

Linda Slight smile

  • Well, we’ve had some adventures with…….MARBLES.!!!!!!!!

    wont bore you though:)

  • It's fine  - I am not even going to ask the obvious question!! Turtle (It's the nearest emoticon to a tortoise - and they don't have one of a Pangolin!).

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  • Ha!! There's always one!!  You obviously have far too much time on your hands!!  Innocent.  JoyJoyJoy

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  • Sunday is my day off Grin

    Husband is in a very good place at the moment now that chemo has finished although he does seem to be getting some of the side effects worse. The Happy/Dopey silly old buffer is more in evidence as the brain fog, along with the aphasia from his strokes means that gobbledegook is more prominent. I make him laugh by imitating a barking sealion and flapping my flippers but it has the desired effect to make him stop and concentrate. Luckily Grumpy has not put in much of an appearance. Sneezy is showing his face as he now seems to have a drippy nose and sneezing, along with mouth ulcers. Sleepy appears after lunch so off he toddles for his afternoon nap. I suppose I have got to be Doc which only leaves Bashful - any takers?

    A couple of weeks ago he developed oedema in one leg but that is now going down. Has anyone else found that they have had post chemotherapy side effects and if so how long did they take to disappear?

  • Bashful - any takers?

    He's the "Greek God" I think isn't he?

    Yes -  I too like a decent Sunday - I take our two rescue dogs for a decent walk (although one is 15.5 years old he still gets pleasure in a long walk - the greyhound just likes to be out!!) and then it's a couple of pints of Real Ale in our local with some friends where we put the world's issues to rights!!

    I sometimes  have my badge on which my daughter bought me it says:

    "No cancer talk today - I am having a day off".

    People know then not to ask how I am and not to tell me I am looking great!!

    Enjoy the day - Brian SunglassesThumbsupSunglasses.

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  • Hi,

    My stats very similar to your husbands , I was nearly 59 when it all started with me , If you want a look on my profile to see how it may go for the OH , however we are all different. Take care and best wishes Tony

  • Hi Tony 

    Just read your profile and it really is very similar to my husband.  I was surprised that they wouldn’t start your RT until your PSA was so low. My husbands last PSA a few weeks ago was down to 25 and that was one of the questions I asked, did his PSA have to be at a certain level before he could start RT and he said no not at all. Not sure if this was maybe because he was started on Abiraterone as well, which I believe brings it down again very quickly. I’m pleased though that your journey is going so great, it gives out positive vibes and hope. I hope you go from strength to strength.

    Best wishes.

    Linda Blush